Local Office Spotlight: Epilepsy Foundation Northeastern New York

Local Office Spotlight

Epilepsy News From:

Tuesday, July 24, 2018
Epilepsy Foundation Northeastern New York logo

This month, we are shining a spotlight on the Epilepsy Foundation Northeastern New York (NENY). This local Foundation addresses the importance of care coordination for people with epilepsy. While the use of community health workers or other non-traditional healthcare providers (such as care coordinators) is still a developing field, Epilepsy Foundation NENY has been a leader in their local community, providing these services for over 24 years.

The Role of Care Coordinators

Supporting care coordination and mobilizing community partnerships is a goal for the Epilepsy Foundation partnership with the Centers for Disease Control and Prevention. Local Foundations like Epilepsy Foundation NENY provide a model of care to support people with epilepsy through various aspects of life.

Epilepsy Foundation NENY currently has 9 care coordinators on staff, who aid with coordinating services through Medicare, individual and family grant-funded programs, and services specifically for those affected by traumatic brain injury (TBI). Services offered address a wide variety of needs, including:

Care coordination is offered to over 200 people affected by epilepsy each year in Northeastern New York.

Meet Lexi

Lexi Cartwright

Epilepsy Foundation NENY's care coordination services helped change Lexi's life. Lexi was diagnosed in 2006 with focal onset aware seizures, tonic-clonic, and absence seizures. The coordinated services from Epilepsy Foundation NENY helped Lexi face the challenges of epilepsy, including issues with memory, treatment options, and working with her school to ensure that she received appropriate support.

Lexi recently served as an advocate for New York by serving as a teen ambassador in the Epilepsy Foundation's Teens Speak Up! Program. Services from the Epilepsy Foundation NENY continue to support Lexi and others in their community.

Learn More about the Epilepsy Foundation of Northeastern New York

Along with offering care coordination services, the Epilepsy Foundation Northeastern New York offers a variety of other programs. These programs include:

Thank You Again To The Epilepsy Foundation Northeastern New York For Their Work In Providing Care Coordination to Support People With Epilepsy. We Are Happy To Shine A Spotlight On This Local Epilepsy Foundation!

Authored by: Jody R. Kakacek MNPM | PhD | Senior Director of Programs on 7/2018
Reviewed by: Liz Dueweke MPH on 7/2018

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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