Local Office Spotlight: Epilepsy Foundation Texas – Houston/Dallas-Fort Worth/West Texas

Local Office Spotlight

Epilepsy News From:

Tuesday, January 29, 2019

This month, we are shining a spotlight on Epilepsy Foundation Texas – Houston/Dallas-Fort Worth/West Texas (EFTX) for their training of local community health workers and use of the MINDSET (Managing Information and Decision Support Epilepsy Tool) program.

On the Front Lines of Their Communities

Community health workers (CHWs) are front line public health workers in their communities; EFTX trained 60 of them in October 2018. The 6-hour training focused on challenges people with epilepsy face and different strategies for epilepsy self-management. The training for CHWs included a person with epilepsy who talked about the realities of living with epilepsy and seizures. These real-life experiences helped provide context and build compassion for people living with seizures.

“It really opened eyes that day,” said Program Director and Access to Care Project Director at EFTX Rebecca Moreau. “Participants didn’t realize how prevalent epilepsy is."

Offering this training on epilepsy will allow more resources and information to get to people living with epilepsy where they need it the most, right at the point of care in their local medical center, said Rebecca Moreau.

EFTX partnered with the University of Texas Health Science Center at Houston (UTHealth) School of Public Health on providing the training.

MINDSET for People with Epilepsy

Several of the trained community health workers now work with UTHealth and Harris Health System on administering the MINDSET tool, a clinic-based program to help people with epilepsy assess and improve their epilepsy self-management behaviors. People with epilepsy set and achieve personal goals to manage seizures, medication, and lifestyle with the support of the trained community health worker. EFTX plans to reach 60 people with epilepsy in the Houston area with the MINDSET program and support from their trained CHWs.

MINDSET is being implemented with the help of:

  • Dr. Charles E. Begley, Professor of Management, Policy, & Community Health, UTHealth
  • Dr. Omotola A. Hope, Neurologist, UT Physicians
  • Dr. Atul Maheshwari, Assistant Professor of Neurology and Neuroscience, Baylor College of Medicine; neurologist, Harris Health System

Learn More about the Epilepsy Foundation Texas – Houston/Dallas-Fort Worth/West Texas

EFTX provides programs and services to 176 of the 254 counties in Texas. These programs include:

Thank you to Epilepsy Foundation Texas Houston/Dallas-Fort Worth/West Texas for training community health workers and supporting people with epilepsy in their self-management!

More Information

Authored by: Liz Dueweke MPH on 1/2019
Reviewed by: Jody R. Kakacek MNPM | PhD | Senior Director of Programs on 1/2019

Our Mission

The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
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