The need for telemedicine is great now for all. It is seen as a potentially useful tool for persons with epilepsy because of our driving / transportation needs. It's even been noted that persons in rural areas should benefit because our access to specialists is often restricted due to the distance we'd have to travel for treatment. Right now living in the rural area is an asset because it naturally provides great social distance.
But access to high speed internet isn't the easiest thing to come by in rural areas. There is no cable TV service where I am. Internet via landline phone is terribly slow. I recently got hooked up with HugheNet for satellite service and found it doesn't provide and faster service. Even before internet usage increased with the COVID 19 outbreak I could not use ZOOM. I could not conduct a therapy session a couple weeks ago through blue Jeans. This outbreak will eventually pass and I may never need to use telemedicine. But I do receive treatment with RNS and once a week I need to upload data to my doctor’s office. I cannot afford to let slow internet service impair this essential part of my treatment.
Will the Epilepsy Foundation give suggestions of the proper legislators to contact about this essential need?