Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Complementary Therapies

marijuana and epilepsy

12/2019 | 1 Comments

Hi there. 25 yr old daughter has medicine resistant epilepsy. She has a VNS and RNS. Recent allergy to Lamictal. She has tried CBD oil but it did not...
Safe B-Complex other ingredients

11/2019 | 2 Comments

I just purchased B-Complex vitamins, and there are some questionable ingredients that I’m my google research could cause seizures. What B-complex is...
Sleep seizures and CBD oil

10/2019 | 2 Comments

Ive had seizures in my sleep since i was in 3rd or 4rd grade. I am now 37yrs old, been on Tegretol XR since then. The medication controls my seizures...
My life story

07/2019 | 1 Comments

My name is Ariel. I am 29 years old. I have had epilepsy since I was about 2. I had a 3 and a half hour grand mal when I was 2 and it caused permanent...
Share my story

07/2019 | 2 Comments

The Short story: I had 3 grand mal seizures when I was 32, the meds just did not work for me, took magnesium, trace minerals, regular minerals, all...
Cbd + epilepsy drugs

05/2019 | 3 Comments

I take a combination of Keppra, lamictal and Zaronyin and I am still not seizure free. I have absence seizures. I’m curious about CBD oil. Does anyone...
IV Vitamin Therapy

04/2019 | 4 Comments

Has anyone tried IV vitamin therapy to help manage their seizures? If so, what was your experience with it? What was the result? I know that there is...
Marijuana and epilepsy

01/2018 | 1 Comments

Hi, I’m heading to Amsterdam soon with my friends and I wanted to know if anyone had any advice about me trying weed or space cakes while I’m there. I...
Finding a neurologist open to CBD oil

11/2017 | 8 Comments

I live in Missouri where CBD oil has become legal in the last couple of years if a neurologist gives you an "oil card." My seizures are caused by a...
VNS not putting out any data.....

11/2017 | 1 Comments

Hello, was just wondering if anyone else has had or is having the same issue. My 23 yr old daughter has had seizures since she was 4 up until she was...
MSG diet - anybody else was lucky ?

10/2017 | 1 Comments

Hi all, did you ever try getting rid of MSG in your food ? It's probably only for post-traumatical epilepsy (my case), but if you still cannot find a...
Control epilepsy with neurofeedback

09/2017 | 2 Comments

Hi all. I'm hoping that I can help someone. I have had genetic generalised epilepsy for 35 years. About 22 years ago though, whilst going to uni, it...
VNS level too high

08/2017 | 0 Comments

I have a question Has anyone's doctor turned their VNS to high to where there has been problems? If so what was it. Cause mine turned mine up to high...
VNS vs. Biofeedback... thoughts

04/2017 | 4 Comments

I'm on my 3rd failed med, with 3 failed "complimentary med" to boot. So I'm looking around. Last year I tried the Keto diet but I just don't have the...
seizures/med

03/2017 | 1 Comments

I am 60 I had my lat 1 n 2002 I had total of 3 b 4 I got the rot dose.I hac Ben taking the med depakote.I Ben talk every day for 15years I hav takn...

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