Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Creative Corner

Personal EEG machine

03/2011 | 6 Comments

I think it would be cool to have my own EEG machine so I could monitor my brainwaves at home. Of course I would still see a doctor, but I think a...
Making art about epilepsy

02/2011 | 0 Comments

Hi everyone! My name is Rita Marcalo and I've suffered from epilepsy since a young age (I'm now 38). I am also an artist/choreographer/dancer, and I...
My website

10/2010 | 2 Comments

I've recently come to a creative block with my art. I've recently had a seizure and for reasons I can't explain, I have become scared to draw. It's...
WHITE CAPS

09/2010 | 0 Comments

WHITE CAPS White caps off in sight On a moonlit night Billows of soft waves My eyes all agaze Oneness at best God’s beauty and rest Starry skies shone...
Me & E Makes Three

09/2010 | 3 Comments

Me and E makes three. There’s me, there’s E and someone else in-between. That’s three. Once there was just me. And then there was E. So who is this...
It Wasn't My Life

09/2010 | 7 Comments

My first stab at 'writing', if you can call it that! It wasn’t my life. It didn’t belong to me. My mind and the world, Were so foreign to me. It wasn...
You Know YOU have Epilepsy When...

06/2010 | 0 Comments

I saw this on the internet, in a blog called E. is for Epilepsy, by Paula Apodaca ( http://epilepsy-paula.blogspot.com/ ). Just had to share this! The...
Brain On Fire

02/2010 | 0 Comments

I just recently started experiencing seizures at the age of 25. I will turn 27 March 3rd. I know my grandpa has turret's syndrome and epilepsy as well...
Women With Epilepsy

11/2009 | 1 Comments

Hello Ladies! I need women to email me and tell me their epilepsy story, esp. if you have had surgery. And if you had Dr. Devinsky and Dr. Doyle and...
Seizure Driven Blindness

07/2009 | 0 Comments

One shot ten years+ ago***** Changed life’s path***** This constant downward spiral***** Immense pain second only to seizure driven blindness***** A...
Epilepsy and Me

06/2009 | 3 Comments

My first seizure occurred, I was sixteen years old, They said it could be Epilepsy, i felt so very cold. Seizures came fast and not far between, So...
Please Read, beautiful tear jerker

06/2009 | 1 Comments

A drunk man in an Oldsmobile They said had run the light That caused the six-car pileup On 109 that night. When broken bodies lay about And blood was...
Poet with Seizure disorder SUDEP

05/2009 | 0 Comments

Hi, all. This story was in my local on-line newspaper. A young poet passed away after she stopped taking her meds -- they interfered with her ability...
Short story

04/2009 | 5 Comments

I tried to find the words in my mind, but I could not seem to write them on the stone. I looked at you, but I saw nothing. It was unexpected, cruel...

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