Community Forum Archive
72-hour VEEG - what to expect?Tue, 05/05/2020 - 21:38
Hello everyone, I had my first ever tonic-clonic seizure last Thursday, before then I now realise I also appear to have been experiencing focal awareness seizures too (deja vu, rising feeling in stomach). My first 2 EEGs showed some evidence of typical epileptic activity but were not enough to make a diagnosis. However, considering my age, the deja vus, and a strong family history of epilepsy, my doctor is going with an epilepsy diagnosis. So, next week I'll be in for a 72-hour video EEG as an inpatient. I just want to know what I can expect, what were people's experiences? How can I prepare for the practicalities? Naturally I will speak with my doctor in more detail about this, but I don't live in my native country (from UK, live in Switzerland) and would appreciate hearing some personal perspectives in English too. This website has been a real treasure trove of information during this confusing time for me, so thank you all!
Hi, Thank you for posting. We
Submitted by Anonymous on Wed, 2020-05-06 - 09:50
Hi, Thank you for posting. We cannot determine if you have epilepsy or not, so we are glad to hear that you’re following up with your doctor for additional diagnostic testing. To learn more about video EEG’s, howto prepare and other helpful tips, please visit: https://www.epilepsy.com/learn/diagnosis/eeg/video-eeg . Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors'visits, and how to take control of seizures, seizure first aid & safety, https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy .You may want to consider keeping a journal or a diary to document how you’re feeling and to help track your seizures, which will be very helpful to review with your doctors. My Seizure Diary, can be used to organize health issues, manage medications, develop seizure response plans, and more, which can be share with your healthcare team: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, it's important to remember that you are not alone, and we are here to help support you. For help getting connected to additional resources in your country, visit: https://www.ibe-epilepsy.org/about/ibe-chapters/europe/, or https://www.ilae.org/regions-and-countries/regions/ilae-europe/chapters
Sorry, I should clarify, my
Submitted by Khizz on Tue, 2020-05-05 - 21:50
Sorry, I should clarify, my doctor hasn't diagnosed me yet, but he considers epilepsy a likely diagnosis.