I’ve been experiencing seizures since I was 9. I’m now 20 however I have only just been diagnosed as having epilepsy. My first seizure happened about a week after my parents got divorced, I had a normal EEG etc so they put it down to stress at the time. Two years later when I was 11 I had another seizure, this time at the height of me being bullied in primary school, again they did numerous tests which all came back fine so they said stress was a likely course. I had another seizure two years later during my first week of high school, I was a little stressed about the change and what lied ahead of me, I remember being slightly dehydrated that day as well. Approximately a year later I had another seizure which I recall was around the time of year 9 exams so I was stressing about my grades etc. I had another eeg done which came back as fine.
I went for almost 6 years without having another seizure or aura and I have put this down to the fact I seemed to have got on top of my stress, I didn’t seem to worry about things like I used to. I got through high school with great grades and started an apprenticeship as a mechanic 2 years ago which I am really enjoying. August last year I started to look at getting my first car loan which, as you would imagine got me rather stressed for weeks as I wasn’t sure whether or not I could get one. I had an appointment with the bank on Saturday the 24th which thankfully I was given the approval for the loan, however on the following Tuesday whilst I was at work I suffered one of my dreaded seizures which I hadn’t had for nearly 6 years . I went to see a new neurologist who over the next couple of months sent me off for 2 awake EEGs which came back as normal. He also sent me for a sleep deprived EEG which came back as showing a non epileptiform abnormality which he said was due to me being sleep deprived and was nothing to worry about . This was back in November and he said as long as I didn’t have any more episodes he would see me in 6 months to see how I was going- he still hadn’t diagnosed me as being epileptic and had said it was likely due to the stress especially considering my history. Unfortunately I had another seizure in February and another 2 last week (both on the same day)
Again these Seizures were linked to stresses with work and covid 19 as a number of people in my workplace have lost their jobs. The two seizures that I had last week, one occurred at home and the other one occurred whilst I was at the hospital which was witnessed by the nurses and doctors who described it on my release papers as a “seizure -like episode”.
The next day I had an appointment with my neurologist. He basically said that because I had a seizure in February and the 2 last week, it’s probably a case of epilepsy so he prescribed me medication. He didn’t even ask my mum who has witnessed many of these events what happens during the event etc. We was in his office all but 5 minutes. I did feel as if it was a case of guessing and not investigating.
I’ve never experienced seizures during the night, I am never confused after a seizure, my eyes are always closed during the episode; I’ve never experienced incontinence, and most importantly, my seizures seem to always be directly linked to stress. I also experience very short “auras” either on their own or before a seizure; usually only lasting a few seconds. Migraines are a big thing for me as well, I usually have a migraine hours before a seizure.
Would it be worth getting a second opinion from a different neurologist?
Many thanks in advance