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Strange experience: Partial Complex Seizure (focal impaired awareness). Anyone have strange seizure stories?

Thu, 01/30/2020 - 04:47
I had what I thought was a panic attack, and when I told my neurologist's nurse, she said to go to a psychiatrist. The psychiatrist said he thinks it was a seizure, but he was not really sure. I have a referral with a different neurologist that specializes in seizures and psychiatry, but I am not sure when that will be. This happened at my school ( I teach fourth grade) just before a field trip, so thank goodness we had not yet left the building, and I was able to escort the students out of the classroom once I realized that something was really wrong, without them being the wiser. My experience began with confusion and a feeling that I forgot something (not tangible) really important. (similar surreal feeling of deja vu) Followed by more confusion, fear and panic. I am not exactly sure of the time frame ( at least 45 minutes). I was in extreme fear and did not know what was happening. I thought that everyone I loved was dead and that I was dying. I hyperventilated and had an aura (strange sensation of my immediate environment being on a completely different wavelength.) It was the scariest experience I have ever had. I recently was forced to take ALEMBIC brand lamotrigine, instead of the CADISTA brand about two week prior to this incident. about a week into the ALEMBIC, i was unable to get more than 2 hours of sleep a night. I have been under some stress due to some recent trauma, but not from work, I love my job. The only thing that I had done differently, other than taking a different suppliers lamotrigine, was I danced for about three hours the night before ( i have done this hundreds of times in the past few years, with no consequence), just not in a month or so. Anyone ever experience something similar? I had very odd terrorizing thoughts...looking forward to seeing specialist to find out more. In addition, I have had myoclonic seizures on my left side, (lasting for months at a time) a few tonic clonic, absence seizures and partial complex seizures throughout the years. I had a double craniotomy in 1980 that culminated with an aluminum mesh plate (yikes!). Looking for answers...feeling alone. Thank you


Hi, Thank you for posting, it

Submitted by Anonymous on Thu, 2020-01-30 - 09:44
Hi, Thank you for posting, it sounds like you've been through a lot. it’s important to remember that you are not alone, and we are here to help support you. If you ever need to speak with someone please contact our Epilepsy and Seizures 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, connect you to resources, provide referrals and additional support. 1-800-332-1000, or   One of the most important things to help you live with epilepsy and seizures is to find a support network. Learn more about your community support options here: Seizures and auras can take on many different forms and affect different people in different ways. Some commonly reported symptoms before and after a seizure include feelings of déjà vu, fear/panic or impending doom (intense feeling that something bad is going to happen). To learn more about seizures and auras,please visit: your seizures and these other episodes you describe experiencing in as much detail as possible, (like you’ve done in yours posts) will be very helpful to review you’re your healthcare team. My Seizure Diary: a great tool for tracking & identifying seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with your healthcare team. If you have not already, you may want to consider seeing epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: is also important to recognize that epilepsy is more than just seizures, your overall well-being and emotional health is just as important:   The Wellness Institute: ,has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you & your family.  For practical & effective strategies to enhance your well-being, learn more here:

I have strong feelings of

Submitted by kwmfc0730 on Mon, 2020-02-24 - 19:45
I have strong feelings of apprehension and on one occasion had disordered thoughts with my nocturnal events.  I also had severe agitation with pacing.  Now I am taking Lamotrigine and Clobazam with about 75 percent improvement.  Still wake every night 1 to 3 times, but the s/s are so much more bearable!  The sole eeg finding has been spikes at night.  Please don't give up!  Keep posting and I will respond.

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