Community Forum Archive

Employers dont get epilepsy

Mon, 10/28/2013 - 20:42
IS it just me or are other epileptics out there finding it tough to either keep a job or has an employer that just does not get what epilepsy is, what it does to the individual, what kind of life that you have to endure being diagnosed w/ Epilepsy? Please reply w/ answers, discussions, etc. HELP me understand! PLEASE


Re: Employers dont get epilepsy

Submitted by Lenaorrick on Mon, 2013-10-28 - 21:36
Hi there, I was diagnosed this past January. I am very lucky to have the job that I do have, where full time is 30 hours which is about all I can handle. Luckily most of my co-workers are very understanding of the difficulties that I go through on a daily basis. They are actually more understanding than most of my close friends. My manager doesnt seem to understand and it can be very frustrating. I do always have a fear that I may get fired because the owners of the small business I work for do not seem to care if someone has health problems or not. This past 2 years have been very difficult for me, being very sick before I was diagnosed and dealing with diagnosis of having epilepsy. I find that those around me do not really understand what epilepsy is and how it impacts a persons life. Many of my friends have a lot of their opinions and at times can be very frustrating because I feel as though they do not even try to understand how difficult this is. The other day one of my co-workers ( which is a new employee) made the comment that I make her nervous because of my epilepsy and possibly having a seizure in front of her. I was very hurt my this because not one second did she even consider how it feels to actually have epilepsy. I hate that epilepsy is so underfunded and most people do not even acknowledge what it actually is how it can fully impact someone's life. Lena

Re: Employers dont get epilepsy

Submitted by tlbeck20 on Wed, 2013-10-30 - 01:04
Lena I completely understand whee you're coming from. I work w/ people who have made similar comments about my ailment and it does frustrate me but I just can't afford to worry about ignorant people like that who don't have the courage to even stand in our shoes for one day and see what it's like, so when it comes to them I say fu(k em!!!! I mean I feel as though when I'm At work or home or Out With friends that I'm a walking time bomb waiting to go off and I agree that I hate how under funded epilepsy research is. I mean the research they're doing w/ VNS stimulation therapy, and deep brain stimulation therapy is remarkable but if they're no funds for research how can they continue? Plus I hate how November is National Epilepsy awareness month yet NO OME KNOWS ABOUT IT!!!! In closing just hang I there and ignore those ignorant fools & remember that because you have this is makes you stronger and more courageous to get up & face each day with a positive attitude.

Re: Employers dont get epilepsy

Submitted by Masterjen on Tue, 2013-10-29 - 17:35
I am feeling the same as you right now.  I am currently trying to get back into the work scene after being diagnosed just over 3 years ago, and managed to get a position in a doctor's office  doing what I was trained to do for my previous job.  It has been a great way to keep my skills up, while only working 1.5 days per week.  Seizures (nocturnal) are still not controlled and bad ones causing me to feel completely wiped the next day occur about every 5-7 nights, so sometimes that bad night is going to land on a night before I am expected at work the next day, and I have to call in to cancel.  It fortunately has not happened very often, maybe an average of once every 2 months.  I'm well-liked by patients, staff and doctors and we get along extremely well.  They were aware of the potential "risk" to canceling due to a seizure when they hired me, and just asked that I be flexible and come in another day to make it up.  But all heck broke loose recently when I had to cancel three days in a fout-week period - just extremely bad luck with seizure timing due to inexplicable worsening of seizures during that month.  Suddenly it was no longer acceptable to come in another day as an alterntative and I was given an ultimatum: miss one more day and I was out of there.  I don't remember their exact wording, except that it hurt a lot.  The implication was that the seizures were my fault and inconveniencing them.  I felt like yelling "Inconveniencing YOU??!!  What about the inconvenience to my life!?"  But I didn't say anything because what they said stung so hard I was just trying not to cry in front of them.  For the 10 years of my regular job, I missed only 5 days due to illness so it's not like I call in sick at the drop of a hat, and this much I did remind them of (slightly different words, though!).  And the icing on the cake, as I'm sure you read, the people I currently work for are doctors!!!

Re: Employers dont get epilepsy

Submitted by tlbeck20 on Wed, 2013-10-30 - 00:50
You need to seek legal counsel if this 'altimatum' was brought up from your current or past employers. Under the American Against Disability Act they CANNOT let you go or terminat u due to an illness, from what I've read from the ADAA. Give his site a read As the the ADAA states: The Americans with Disabilities Act of 1990 (ADA) makes it unlawful to discriminate in employment against a qualified individual with a disability. The ADA also outlaws discrimination against individuals with disabilities in State and local government services, public accommodations, transportation and telecommunications. This booklet explains the part of the ADA that prohibits job discrimination. This part of the law is enforced by the U.S. Equal Employment Opportunity Commission and State and local civil rights enforcement agencies that work with the Commission. So go that site a read and then seek legal counsel. Good luck!

Well without knowing the kind

Submitted by just_joe on Fri, 2014-08-22 - 23:25
Well without knowing the kind of seizures yo uhave it is hard to know which way to go. I was diagnosed over 50 years ago. In that time I have had many jobs. With some jobs it wasn't easy but I generally kept the job and worked at making the job a profession and moved up from there. I also lost a job now and then but it wasn't because of the employer or me. Back in the 70's and early 80's there were fewer regulations revolving around handicaped people. With one job I had advanced and increased the warehousing I had streightened out the shipping and increased the inventory so fewer shipments were needed. But the insurance company Dennis had been using for years would not renew the companies insurance if I was near th dock even when we had a gate which had to stay closed if no trucks were there. So I do know about losing a job because of epilepsy. I also know of losing a job because of epilepsy not because ofthe employer but because of the job. It seems like one of the triggers I have is getting to hot to fast, Yup that hapens in a industerial kitchen. The word epilepsy has a stigma with it that has been around for over 1000 years. I have worked in many industries. From Sales ( both inside and outside) to customer service also handled networking and built web sites. By knowing what I could do and what most of my limitations were I generally could keep a job.  I was part owner of a small company. I handled executive appeals for AT&T for about 15 years so it takes a lot to know when and where to discuss issues. I did tell the project manager I had epilepsy and what needed to be done if I had a seizure while at work. I also knew a diabetic who worked on the same project so if I was having an issue the mam]nager said nothing since the diabetic also has issues he needed to deal with. Not all employers are a--holes and some really do care and want to help others advance. There are some how have people come out and discuss epilepsy or other diseases with different projects each at diferent times

I was told recently by my

Submitted by on Tue, 2014-11-04 - 15:03
I was told recently by my neuro doc that my 2 seizures that I had in a time frame over about 14 years didn't qualify me as "disabled".  I had both seizures at work.  After both incidents, & within weeks I was "laid off" from my job.  The first employer I had worked 8 years for and the other less than a year.  Guess what...I got laid off again after 3 years this year.  I don't expect to get hired by anyone at this "almost retirement" age.  Yes, financially strapped is an understatement!  Now my landlord had me sign a year to year lease (when it was month to month) or leave.  Do you think he wants to get rid of me too?  Please, can someone tell me, are "seizures" considered a disability?

It is better to discuss your

Submitted by SharonDavid on Wed, 2015-03-18 - 08:17
It is better to discuss your situation to the employer before going to work. It can save your job.[url=]Business Cash Loans[/url]

Considering the date of some

Submitted by jill1129 on Fri, 2017-03-10 - 11:09
Considering the date of some of these responses....well, better late than never, right? I have learned that there are companies which 'get off' on hiring people w/ disabilities, although I hate being the 'token disability' person. Like being the 'token black person' some place. Anyway, I finally got a job (I'm a website designer) that allows me to work mostly from home. I spent most of my 20's & 30's working retail & my bosses were very upset - even when I told them ahead of time that I have epilepsy. They were less than happy when I had seizures in front of customers (although it didn't happen often). Also, in my case, I need 24-48 hrs to recover from one before I can fully function again (I call it a 'seizure hangover'), but bosses don't like suddenly having their employees taking unexpected sick days. So I leave early, then can't come in for the next 2 or 3 days after that? That's a firing waiting to happen. It was a good thing I was only working retail to save up money for college!

Yeah unfortunately Epilepsy

Submitted by Simone012 on Fri, 2019-06-21 - 05:54
Yeah unfortunately Epilepsy limits the type of work you can do, I am up front on the 3 illnesses I have. Not every employer understands

Join Our Newsletter

Stay up to date with the latest epilepsy news and stories from the community.