Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Son he Cryptogenic Epilepsy

Thu, 02/14/2019 - 16:12
Hello my son has epilepsy. He’s had it since he was one years old. He is now five and on several medications. He has seen three different neurologist and no one can figure it out. None of the medicines have worked, they only caused more issues due to side effects. We live in Tennessee and they have finally legalized medicinal oils for epilepsy. Downside is his epilepsy doesn’t fall under the requirements to qualify........ though they don’t know his cause, meds don’t work, seizures are worsenin, and he doesn’t qualify?!?!?! That being said does anyone have any information on what state to move to, what insurance to get it, and would he qualify for the medicine? Any information will be helpful and appreciative, because we are to her wits end and love our baby so much, we’ll move if need be.


He's seen neurologists... has

Submitted by Amy Jo on Thu, 2019-02-14 - 17:09
He's seen neurologists... has he been to a comprehensive epilepsy center and seen epileptologists? Have you done any genetic testing? You may have to go out of your state for a better children's hospital to get more answers.

Just asking what medicinal

Submitted by dkb547 on Mon, 2019-06-24 - 18:47
Just asking what medicinal oils for epilepsy would you be speaking of and what would qualify a person ?

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.