Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Epilepsy: Insights & Strategies

Complex Partial Seizures

12/2017 | 7 Comments

Hello I am starting this Discussion about Complex Partial Seizures because I don't see a lot of information about them or see many people discussing...
Hello!

12/2017 | 1 Comments

I am new. This my first post. I. Have a diagnosis of epilepsy due to craniotomty in 5/14 but remain seizure free to date. I am a former rn who tries...
Hello everyone!

10/2017 | 1 Comments

Hello everyone! I am a new person. Very happy to join this forum. Looking forward to receiving the help of everyone. Thank you everyone for reading!
How true are these stories?

04/2017 | 3 Comments

I am helping my sister do some research surrounding epilepsy in pediatrics. My nephew has been seizing frequently and the doctors are unable to figure...
Please help me out

01/2017 | 1 Comments

Hello, My name is Mixi, and i was born with epilepsy. I'm currently 21 but turns 22 in June this year, I have two jobs; childminder at a kindergarden...
Behaviour difficulties in 5yo

11/2016 | 2 Comments

My son's epilepsy has recently returned (he has infantil spasms as a baby) and we're trying to get the meds right. Meanwhile his behaviour is off the...
Getting Meds into a 4 year old

08/2016 | 1 Comments

My 4 year old granddaughter had her first seizure in May. Since then we have only had a 19 day period of controlled seizures. She has Doose syndrome...
Postictal vomiting

03/2016 | 0 Comments

Last Thursday I had some medication related issues and ended up having three TC seizures and a couple simple partials. Ever since then I have been...
Helping someone who doesn't want help

07/2015 | 0 Comments

My brother is 34 years old and has had epilepsy since his early teens. He's gone years between seizures but within the last few years it's been more...
Venus Nerve Stimulator

04/2015 | 0 Comments

Does anyone know,or have they had the VNS implant, and if so how are they doing? My wife has and appointment in June to get one because her seizures...
Ketogenic diet

10/2014 | 2 Comments

I am a 32 year old female married with two little girls under the age of five. After trying several medications that did not control my seizures my...
Triggers - Chemicals or Auras

10/2014 | 0 Comments

It took a long time for me get diagnosed because I am sensitive to chemicals/ fragrances. It kept me isolated and in my house for 2-3 years. Finally...
New diagnosis...

09/2014 | 1 Comments

Hello. My name is mike and 24. I was diagnosed in the ER yesterday as having focal seizures. I have had headaches for a few years. They usually hit as...
Psychic Seizures - Diet?

07/2014 | 1 Comments

Hello, I'm new to this forum and was diagnosed with epilepsy a few months ago after living with it for about 4 years. I have simple partial seizures...
My Journal in picture and living color

11/2013 | 0 Comments

Hello Everyone! In honor of Epilepsy Awareness Month, I have created a facebook page strictly dedicated to epilepsy awareness. It is called "Seize My...
Employers dont get epilepsy

10/2013 | 9 Comments

IS it just me or are other epileptics out there finding it tough to either keep a job or has an employer that just does not get what epilepsy is, what...
Epiplus

03/2013 | 2 Comments

Hi! We are four girls working on a project about epilepsy. We are thinking about developing a product (this is only in our minds, nothing serious) so...

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