Community Forum Archive

My 9 year old son

Thu, 04/23/2020 - 19:39
Hi, I am new to this thread and I am looking for ways to help my son and myself with epilepsy. He had two seizures this month after having none his entire life. He is a healthy boy who plays soccer all year round with no symptoms. His blood work came back normal but his EEG came back abnormal and he is on anti-seizure medication. Today we found out that he has epilepsy and it devastated my wife and I. I am trying to be strong for the family but all I do is cry. I really do not know what to do. Any suggestions would be welcomed. Ken

Comments

Hi,Thank you for posting and

Submitted by Anonymous on Fri, 2020-04-24 - 09:00
Hi,Thank you for posting and we understand your concerns. Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsy . It’s common for those who are in caregiver role to feel overwhelmed. It’s important to remember that you are not alone,and that you’re taking care of yourself and making your health and overall well being a priority.   https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdfEvery parent is different in how they cope with their child's epilepsy. It is important to find someone you trust to talk about your concerns and worries. https://www.epilepsy.com/learn/managing-your-epilepsy/managing-your-child%E2%80%99s-epilepsy . Some confide in their partner and others to close friends and family, or your child’s doctor or other professionals they work with (such as nurses and social workers) are also good resources. It may also be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other,by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources, 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates

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