Community Forum Archive

Sorry to hear that you missed asking your doctor this important information.  It's like leaving on a trip and forgetting something very important and not having a chance to go back.  I'm not a doctor and I don't know all the details of your boyfriend's condition.  But understand one or two seizures by themselves will not hurt him unless he is injured from the seizures.  I have a couple of suggestions:We can communicate with many doctors today via internet.  Do you have an account set up to communicate with Dr's office?  Try emailing your doctor your important questions.  I've found doctors work very hard and have had them respond to my emails on the weekends or late hours.Again do not panic; a seizure is scary but if your boyfriend has been taking some medication then even too low of a dose will do some good to prevent serious, on-going seizures.  Keep track of what happens and report to the doctor next week.  Only if he begins to go into non-stop seizures will you need to seek extra emergency help for the seizures. The epilepsy foundation has good info at their site https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/treatment-101-basics 

Hi,Thank you for posting and we understand your concerns. Michael has shared some great advice and suggestions in his comment. It can be hard to keep track of all of the questions you all want to ask the doctor during appointments, so keeping a journal or a dairy that both you and your boyfriend can access, may help by keeping all of your notes &amp; his medical records together in one place. My Seizure Diary can be used to organize his health issues, manage medications, record side effects, track seizures, develop seizure response plans, and more which can be shared with members of his healthcare team. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary  . As Michael suggested you could try reaching out to his healthcare team electronically via email,  secure patient portal, or try calling their office to leave a message for a member of his healthcare team to return your call and see what the best form of communication is with that particular office. It’s important that you feel confident in knowing what to do if your boyfriend were to have another seizure. The first line of response when a person has a seizure is to provide general <em>care </em>and comfort and keep the person safe. For most seizures, basic seizure first aid is all that is needed. The steps are simple - Stay. Safe.Side. Review how to administer seizure first aid, here: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/first-aid-seizures-stay-safe-side . In addition to learning seizure first aid, seizure action/response plans are very helpful tools used to help you understand how to respond appropriately if he has a seizure and what constitutes as a seizure emergency for him. To learn more about seizure action or response plans, pleasevisit: https://www.epilepsy.com/learn/managing-your-epilepsy/seizure-response-plans-101It’s common for those who arein caregiver role to feel overwhelmed. It’s also important that you’re and making your health and overall well-being a priority as well. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf  Additionally,you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline. Or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates , find support groups, events, and programs in your community.