Hi. My 3 yr old was recently dxed with epilepsy

He had a febrile seizure last year and what I felt at the time were 'mini seizures' for a few weeks afterwards - no one else noticed them and they went away so I thought it was just me!

In May, just a couple of weeks after his 3rd birthday, he had an unexplained fall at preschool.  Then he had one at home - both seemed strange, but they were so quick that no one was really sure what they saw.  Then he had a definite drop seizure when my husband was helping him get dressed.  So we went to the Dr.

The drop seizures started off being a few times a week and at that stage we didn't medicate because they weren't doing him too much damage.  But they quickly progressed to around 10x per day. He was put on epilim which initially worked miraculously, then we went back to one seizure per day so we upped the meds.  The ped says that we are still on a fairly low dose.

The drop seizures are now well-contained - the only time we've had any recently was when he had a virus and a fever.  But in the past month we have started having tonic-clonic seizures.  They are still about a week apart but each one is closer than the last.  When he had the first one I took him to our dr.  The next one we just rode out, and the one after that was a 5 minute seizure followed by another shorter seizure before he regained conciousness.  We took him to A&E just in case, but there was nothing really in it to interest them!

We go back to the ped on Nov 23.  We're in New Zealand so our health system might be a bit different than some of you are used to - the ped is the 'specialist' we see - anything non-epilepsy related we see our GP (who seems a bit out of his depth with epilepsy).  I'm interested to talk to other parents with children with epilepsy.

I'm still working my way around this forum - its a bit different to other forums I belong to.  But I thought I'd jump in and introduce myself.

Teresa