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1 mo baby having 7 seizures a day
Tue, 01/28/2020 - 22:40My 1 mo baby boy started having seizures from 6th day of life. We went through every test possible and now awaiting genetics report.
His seizures are identified as tonic generalised seizures lasting for 2 mins with a frequency of 7/day.
He is currently on Phenobarbital & Keppra but still the frequency is not reducing. His regular Vitamins plus Pyridoxin, Folonic Acid and Biotin are also continuing.
If anyone has any practical solutions to reduce the seizures - kindly share.
Hi,Thank you for posting, we
Submitted by Anonymous on Wed, 2020-01-29 - 09:23
Hi,Thank you for posting, we understand this must be very upsetting and scary for you'll to experience. It’s important that you all are continuing to follow-up with your son’s healthcare team to review this further and if he continues to experience any changes in seizure types/frequency, side effects, moods, symptom or behaviors to help determine what individual treatment plan is best for him. If you have not already, you all may want to consider having your son see an epileptologist (epilepsy specialist). For assistance finding a specialist near you, please visit: https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialistOur new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety. Learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/new-seizures-and-epilepsyDocumenting his seizures his seizures in as much detail as possible will be very helpful to review with his healthcare team. My Seizure Diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryis a great tool for tracking & identifying seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers,and therapies, that may affect seizures and wellness, which can be shared with his healthcare team. It’s common for those who are in caregiver role to feel overwhelmed. It’s important to remember that you are not alone, and that you’re taking care of yourself and making your health and overall well-being a priority. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdfIt is important to find someone you trust to talk about your concerns and worries. Some confide in their partner and others to close friends and family, or your child’s doctor or other professionals they work with (such as nurses and social workers) are also good resources. It may also be helpful to connect with other parents who may have similar experiences, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline