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The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Lennox Gastaut Syndrome

A place for parents and caregivers to learn and get support from people taking care of infants, children, and young adults with LGS.

New to LGS

03/2019 | 0 Comments

Our son, now almost 17 months old, has been diagnosed with LGS. He is quite young to present as he has from what we understand. But we have known in...
Has anyone gone toxic on an AED?

04/2018 | 1 Comments

Of all of the AED's out there has anyone ever gone toxic on one? I've gone toxic twice on two different medications so I was curious if anyone else...
IS / LGS Meds not working

02/2018 | 4 Comments

Hello, Here is our backstory. My son was diagnosed with infantile spasms at 6 months, we went through alot of meds to get it under control. Started...
LGS Patient and Caregiver Discussions

11/2016 | 0 Comments

If you're in the areas listed below and suffer from Lennox Gastaut Syndrome, Triangle Insights Group invites you to participate in patient and...
LGS and OCD-twice the fun!

05/2016 | 0 Comments

Looking for help-my 25 year old daughter is out of control-compulsive drinking, stacking, sorting, unplugging everything, opening doors and windows...

01/2015 | 4 Comments

My 14 year old disabled son is currently on Phenobarbital Depakote Topamax and the new dr we saw yesterday added Onfi cause he's been having drop...
Info on LGS

12/2014 | 0 Comments

HI everyone, Check out the Information For Lennox Gastaut Sydrome at We'll be doing more...

08/2014 | 1 Comments

100% success

05/2014 | 0 Comments

It has been 5 years since we took on a diet similar to that of the Ketogenic .We now have six children living seizure free and on no medication.With a...

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