Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Epilepsy Monitoring Unit
Fri, 11/01/2013 - 14:22HAs anyone here been subjected to being stuffed in to an EMU?
I had the pleasure 2 times. The first time I was in for 10 days and had 2 szs that they claimed were questionable whe nthey were definite. They took rotten care of me, 36 electrodes on my head. tehn they said he whole repot was inconcclusice over the while 10 days. I had my shoulders shrugging one time and the seconc time my legs were going at it. but they labeled it as inconclusiveand that I was faking. NOT so!
then when my neurologist that I have had now for almost 7 years got that report he was seething mad. He put me in his EMU and did his own thing. I was in for 6 days and had 5 szs. 2 staring szs in one night, and 3 major Complex PArtial szs random thru then nexst few days all of which had to be stopped with IV Ativan. TO this day I am on 800 mgs of Lamical 200 mgs of Topamax and 3 mgs of Klonopin and have a VNS that is set at 1.8 minutes OFF and 21 seconds ON.
nancy