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Juvenile myoclonic epilepsy with midday seizure

Tue, 05/26/2020 - 16:15
Hi there I’m a 33 year old female, who was diagnosed with JME at age 19. I started lamictal then and haven’t stopped. I have been relatively seizure free since, with the exception of few grand mals which were as a result of excessive drinking and / or complete deprivation of sleep, all happened either early morning or as I was going to sleep. I can normally feel a seizure coming on, deja vu, aura, etc but over the weekend I had a seizure in the middle of the day, no warning signs, no alcohol, no sleep deprivation. I wonder if anyone else with JME has experienced seizures throughout the day with no warning signs? I’m slightly concerned that this seizure is out of the ordinary and could be as a result of something else. Thanks so much in advance!! :) Tanja


I should also mention I haven

Submitted by tpod87 on Tue, 2020-05-26 - 16:19
I should also mention I haven’t had a seizure in 3.5 years, so this one is very much out of the ordinary.

Hi,Thank you for posting, and

Submitted by Anonymous on Wed, 2020-05-27 - 09:12
Hi,Thank you for posting, and we understand it can feel frustrating to have a seizure after not having one for the last 3.5 years. Seizures can take on many different forms and affect different people in different ways. For some,symptoms during a seizure usually are stereotypic (occur the same way or similar each time), or episodic (come and go), and may be unpredictable. It's important that you’re able to recognize that this feels different from your auras and seizures you’ve experienced previously. It’s also important that you’re following up with your healthcare team to review this further and if you continue to experience any changes in symptoms, behaviors,moods, or seizure types/ frequency. As you mentioned, some of the most frequently reported triggers for people living with epilepsy include, lack of or poor-quality sleep,stress & moderate to heavy use of alcohol.  It is great that you’ve have been able to identify your triggers, this can help you and your healthcare team detected potential patterns, allowing you to modify your behaviors and lifestyle as appropriate. In addition to identifying your triggers, tracking your seizures and documenting how your feeling in detail, will be very helpful to review with your doctors. My Seizure Diary can be used to organize your health issues, manage medications, develop seizure action plans and more. . Additionally, you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contact your local Epilepsy Foundation:

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