Community Forum Archive

new type of temporal lobe seizures?

Thu, 10/31/2013 - 06:30
I was diagnosed with TLE this year after suffering from epilepsy for 7 years (since I was 11/12) and being told it was blood pressure, hormones or blood sugar issues. anyway I've been on lamictal since I was diagnosed, now (50 mg) a day. my last seizure was on the 29th of August my seizures for the last 7 years have been a rising feeling in the chest, dizziness, lack of muscle control in my legs and 10 seconds on jerking and shaking. however today was different. earlier today I had blurry vision in my eyes. I dismissed it and it went back to normal. a few hours later I was with friends then my left arm went numb. it was tingling, numb and felt swollen. the sensation was strong in my pinky, then the same level of sensation moved to each finger individually. I went to the doctors and by the time I got there my arm was fine but the sensation moved to the left side of my face. the left side of my lip/cheek dropped and felt numb/tingly. the sensation then moved into my mouth/tongue. my left eye went blurry, and I started seeing stars and both eyes went quite clear and vivid. after the numbness and tingling subsided I had a massive migraine. I NEVER get migraines. I was told by my GP it is most likely a seizure. in my entire 7 years of suffering with epilepsy I have NEVER had a 'seizure' like this. had anyone else had a similar experience? and if so what has your specialist said/suggested? I can't afford to see a neurologist right now and I'm really scared.

Comments

Re: new type of temporal lobe seizures?

Submitted by 3Hours2Live on Thu, 2013-10-31 - 16:46
Hi ChaffroGirl, I've had many similar experiences with temporal lobe epilepsy (TLE). Many (if not all) forms of TLE intersect with categories of Limbic Seizures, which explains many of the natures of subjective sensations and objective signs involved with TLE. The seizures of TLE mutating into other forms and types of seizures (from into variations of similar TLE, to, into such, as say, occipital seizures (hence, more confusing "migraine" effects), secondarily generalized tonic-clonic seizures, etc.), has the broadest inclusion under the word "kindling", as used in studying seizures, the epilepsies, and the neurological aspects of behaviourism (Pavlov, of Pavlovian Conditioning fame, was one of the earliest to note the similarities of the neurological phenomena involved in learning overlapping with the phenomena of kindling in epilepsy). It took about 30 years before my clusters of simple partial seizures finally kindled into regular and frequent secondarily generalized tonic-clonic seizures during the clusters. Some theories of kindling regard the neurological pathways of spreading seizures developed over longer periods of time from multiple incidences of seizures repeating, as being irreversible soon as the pathways are ingrained. Subsets of these theories on kindling pin hopes of preventing this by both preventing/minimizing seizures, or by relying on the neuro-protective effects hypothesized as provided by the newer anti-epileptic drugs (such as levetiracetam), even if the seizures cannot be fully controlled. Two of the books I have include "Limbic Seizures In Children" by Avanzini, Beaumanoir, & Mira (2001), and "Kindling 6" by Corcoran & Moshe (2005). A word search in the first book for "kindling" returns: http://books.google.com/books?id=Z3eX0Mu4KdQC&printsec=frontcover&dq=Avanzini+Limbic&hl=en&sa=X&ei=ppxyUsOmHoTW2AWuqYGQDw&ved=0CC0Q6AEwAA#v=onepage&q=kindling&f=false and a word search for (epigastric) "rising" returns: http://books.google.com/books?id=Z3eX0Mu4KdQC&printsec=frontcover&dq=Avanzini+Limbic&hl=en&sa=X&ei=ppxyUsOmHoTW2AWuqYGQDw&ved=0CC0Q6AEwAA#v=snippet&q=rising&f=false A word search in the second book for "levetiraetam" returns: http://books.google.com/books?id=y5ah3QWzUT8C&printsec=frontcover&dq=Kindling+6&hl=en&sa=X&ei=6qZyUsenM4WM2gWLs4HYAw&ved=0CC8Q6AEwAA#v=onepage&q=levetiracetam&f=false Lasting & uncontrolled TLE progressing through adolescence also has the hotly contested, but often theorized, complications of finally resultant "Geschwind Syndrome", "Forced Normalization", etc. Tadzio P.S.: As a quick note, by moniker of "3 hours to live" is from what I thought was just another migraine (but much more intense than usual) common with my post-seizure clusters. The "migraine" turned out to include a frontal subdural hematoma from head injuries during seizures, and ER told me I had 3 hours to live unless I was quickly transported to another hospital with skilled neurosurgeons available. A GP should have checked for such problems, but epilepsy sometimes get the blame for everything, even strokes, TIA, heart attacks, etc. "Imitators of Epilepsy" gives very good "reverse" discussion of such: http://www.ncbi.nlm.nih.gov/books/NBK7396/

Re: new type of temporal lobe seizures?

Submitted by just_joe on Thu, 2013-10-31 - 16:24

afternoon

I read your post and have read the answer to your post.

Forgive me if you think it weird but I and heard and seen TLE. It is newer to me since it came out after neurologists went into specializations. I have had many of the things you posted. I know that there are many different types of seizures because I have many. I also know that people with epilepsy need to be seen regularly and that there are reasons for that visit. When you are growing your body changes which can mean your medication dosage needs to be risen or lowered. Sometimes your doctor can couple another medication with your current medication. Since this is the first time you have had this happen it could be precieved as a possiable break thri seizure.

As I said I do not know everything about TLE becasuse I was diagnosed with epilepsy 50+ years ago. I have Grande Mal, Pettit Mal  and Focal motor Epilepsies. I never made the connection until later in my life but I could have had auras,absence seizures and partial seizures for a couple of years before I had my first grande mal seizure. Back then there were no types. 

I had funny feeling in my hand and my fingers tickled some. My hand wanted to rise up when I wanted it by my side. I had weird feelings in my head from time to time almost a dizzy feeling but not totally dizzy. All of these sensations weree happening at different times during the day. After the first grande mal seizure my PCP asked many questions an I answered the questions. Understand I was 12. I was put on medication and I did not have another grande mal seizure. I had some weird seizures which all started with my right hand rising up. Once it got shoulder level I went down into a convulsion. Those would be the focal motor seizures.Focal motor seizures are focalized on one side of the body. What caused my epilepsy was scared brain tissue in the left side of my brain. THe left side controls the right side of the body. Now understand that grande mal seizures are not pretty and thay do scare people. The seizures I was having look just like grande mal seizures and the difference is in a focal motor convulsion I was aware of everything going on around me. I saw everything headr everything and understood everything. I just could not stop the seizure.

Now I do not know much about TLE but I do know that seizures of any kind can morph inot other seizures.

There is something I can say. Medications today are being created to treat seizures by their types. I say that because I know what the older medications did. Back in the stone age the medications were being created to drug down the entire central nervious system. They were also called downers. Todays are working on types which means less interferrance with normal processes. No more feeling drugged down or zombie like.

We have come a long way in the last 50 years but there is a lot more that can be done. Understand that back in the 1960's many people with epilepsy were still being put away in homes away from the public. In the  1970's there were states which would not give people with epilepsy a marriage license.

While I am not seizure free I can say that I have not had a convulsive seizure since 1973. The seizures I have today are nothing when compared to the seizures I had back then or even in the 1980's and 1990's. I am not as drugged down and instead of 30 mintues to 2 hours my seizures are seconds and minutes

I hope this helps

Joe

afternoon

I read your post and have read the answer to your post.

Forgive me if you think it weird but I and heard and seen TLE. It is newer to me since it came out after neurologists went into specializations. I have had many of the things you posted. I know that there are many different types of seizures because I have many. I also know that people with epilepsy need to be seen regularly and that there are reasons for that visit. When you are growing your body changes which can mean your medication dosage needs to be risen or lowered. Sometimes your doctor can couple another medication with your current medication. Since this is the first time you have had this happen it could be precieved as a possiable break thri seizure.

As I said I do not know everything about TLE becasuse I was diagnosed with epilepsy 50+ years ago. I have Grande Mal, Pettit Mal  and Focal motor Epilepsies. I never made the connection until later in my life but I could have had auras,absence seizures and partial seizures for a couple of years before I had my first grande mal seizure. Back then there were no types. 

I had funny feeling in my hand and my fingers tickled some. My hand wanted to rise up when I wanted it by my side. I had weird feelings in my head from time to time almost a dizzy feeling but not totally dizzy. All of these sensations weree happening at different times during the day. After the first grande mal seizure my PCP asked many questions an I answered the questions. Understand I was 12. I was put on medication and I did not have another grande mal seizure. I had some weird seizures which all started with my right hand rising up. Once it got shoulder level I went down into a convulsion. Those would be the focal motor seizures.Focal motor seizures are focalized on one side of the body. What caused my epilepsy was scared brain tissue in the left side of my brain. THe left side controls the right side of the body. Now understand that grande mal seizures are not pretty and thay do scare people. The seizures I was having look just like grande mal seizures and the difference is in a focal motor convulsion I was aware of everything going on around me. I saw everything headr everything and understood everything. I just could not stop the seizure.

Now I do not know much about TLE but I do know that seizures of any kind can morph inot other seizures.

There is something I can say. Medications today are being created to treat seizures by their types. I say that because I know what the older medications did. Back in the stone age the medications were being created to drug down the entire central nervious system. They were also called downers. Todays are working on types which means less interferrance with normal processes. No more feeling drugged down or zombie like.

We have come a long way in the last 50 years but there is a lot more that can be done. Understand that back in the 1960's many people with epilepsy were still being put away in homes away from the public. In the  1970's there were states which would not give people with epilepsy a marriage license.

While I am not seizure free I can say that I have not had a convulsive seizure since 1973. The seizures I have today are nothing when compared to the seizures I had back then or even in the 1980's and 1990's. I am not as drugged down and instead of 30 mintues to 2 hours my seizures are seconds and minutes

I hope this helps

Joe

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