Community Forum Archive
Newly diagnosed, auras? Need advice.
Mon, 10/28/2013 - 22:12Comments
Re: Newly diagnosed, auras? Need advice.
Submitted by JennayB on Tue, 2013-10-29 - 10:22
Re: Newly diagnosed, auras? Need advice.
Submitted by just_joe on Tue, 2013-10-29 - 17:34
Good
Keppra is one of the best medications I hve used and I have used AED' for 50+ years
Keppra has not only reduced the number of seizures I was having. It also reduced the time in the seizure and the time to focus (get back to normal). There are other medications that can be coupled with keppra which can also help.
Discuss an increase. I know it takes time to get used to meds but I also know that dosages can be increased and people can be seizure free. I was for over 3 years
I have been a very lucky person because I have been connected to the same group of neurologists since 1970. One woud retire I got his replacement he specialized and introduced me to the next who retired and introduced me to the next and the one I have now had seen my files periodically when one was away and I had questions. But Doc is great and we have had a good relationship.
Did I suggest you get the My Epilepsy Diary which is near the top of the page? If not go look at it and watch what can be done with it. All the information that is put in it can and will be helpful to your neuro. If he uses the information he can see possiable triggers see other prcedures or medications that might help get yu seizure free
Good luck with the call
Joe
Good
Keppra is one of the best medications I hve used and I have used AED' for 50+ years
Keppra has not only reduced the number of seizures I was having. It also reduced the time in the seizure and the time to focus (get back to normal). There are other medications that can be coupled with keppra which can also help.
Discuss an increase. I know it takes time to get used to meds but I also know that dosages can be increased and people can be seizure free. I was for over 3 years
I have been a very lucky person because I have been connected to the same group of neurologists since 1970. One woud retire I got his replacement he specialized and introduced me to the next who retired and introduced me to the next and the one I have now had seen my files periodically when one was away and I had questions. But Doc is great and we have had a good relationship.
Did I suggest you get the My Epilepsy Diary which is near the top of the page? If not go look at it and watch what can be done with it. All the information that is put in it can and will be helpful to your neuro. If he uses the information he can see possiable triggers see other prcedures or medications that might help get yu seizure free
Good luck with the call
Joe
Re: Newly diagnosed, auras? Need advice.
Submitted by tcameron on Wed, 2013-10-30 - 19:03
Jennay,
Absolutely, contact your neurologist. He can't help you if he isn't aware something is wrong. He's the one who can tell you if these are really auras.; which are Simple Partial seizures. It seems like they are, but I'm not a medical professional. He might be able to increase a dose, or change you to another AED. Take good care of yourself, T
Jennay,
Absolutely, contact your neurologist. He can't help you if he isn't aware something is wrong. He's the one who can tell you if these are really auras.; which are Simple Partial seizures. It seems like they are, but I'm not a medical professional. He might be able to increase a dose, or change you to another AED. Take good care of yourself, T
Re: Newly diagnosed, auras? Need advice.
Submitted by just_joe on Tue, 2013-10-29 - 10:01
Jennay
By all means yes talk to youe neuro because you have a large range of dosages and even meds that will work with the keppra
It is highly possiable that those are auras. Auras are basically seizures in themselves. I had wierd feelings fro time to time. I wa also being written up for day dreaming when the testing showed I was among the highest in class. Those day dreams were absence seizures,SO yes what you have been experiancing are or could be auras.
The questions to ask now are How long have you been on keppra and when was the last time your dosage was increased. I am currently on keppra but I take 750 3 twice daily which is maximum dosage. I was still having more seizures and Doc was informed by the drug company that vimpat could work with the keppra and Doc added it the number of seizures has been reduced. Both Keppra and vimpat are made by UCB .
I would suggest you get the My Epilipsy Diary near the top of this page and use it. Write down anything that is different or a litte weird, listen to what you can do and use it because it can be sent to your doc or even printed.
Hope yu get the answers you need and get your seizures controlled
Joe
Jennay
By all means yes talk to youe neuro because you have a large range of dosages and even meds that will work with the keppra
It is highly possiable that those are auras. Auras are basically seizures in themselves. I had wierd feelings fro time to time. I wa also being written up for day dreaming when the testing showed I was among the highest in class. Those day dreams were absence seizures,SO yes what you have been experiancing are or could be auras.
The questions to ask now are How long have you been on keppra and when was the last time your dosage was increased. I am currently on keppra but I take 750 3 twice daily which is maximum dosage. I was still having more seizures and Doc was informed by the drug company that vimpat could work with the keppra and Doc added it the number of seizures has been reduced. Both Keppra and vimpat are made by UCB .
I would suggest you get the My Epilipsy Diary near the top of this page and use it. Write down anything that is different or a litte weird, listen to what you can do and use it because it can be sent to your doc or even printed.
Hope yu get the answers you need and get your seizures controlled
Joe