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Sun, 01/19/2020 - 12:40
Hello everyone. Im hoping that this community can give me some hope as right now I am terrified. My 15 year old daughter started having seizures 1 month ago. She had 2 generalized tonic clonic seizures after waking that last a minute or two and then she is out of it for hours. after testing and visit to neurologist she diagnosed with Genetic Generalized epilepsy and was started on keppra. they told us to slowly get her up to 750mg every 12 hours. Side effects and seizure have been non existent in the 3 weeks she's been on keppra. Last night she had another seizure. We have been on prescribed dose for 7 days. Of course its a holiday weekend. The on call folks said to move her up to 1000mg every 12 hours. Can some one please talk to me. Im scared she's going not going to get this controlled. I literally haven't slept and am nauseous with fear. Has anyone had success moving up to a higher dose with keppra?


Hi, Thank you for posting, we

Submitted by Anonymous on Tue, 2020-01-21 - 06:16
Hi, Thank you for posting, we understand this can be very upsetting and scary for you all to experience. Our new to Epilepsy & Seizure tool kit is a great resource and starting point for learning about what epilepsy is, what resources are available, how to make the most of doctors' visits, and how to take control of seizures, seizure first aid & safety. Learn more here: and how the body may react to certain medications varies for each individual. To learn more about Keppra & medication side effects, please visit: It's important that you’re continuing to follow-up with your daughter’s healthcare team to express your concerns and if she continues experience, changes in seizure types/frequency, symptoms, side effects, moods and behaviors to determine what individual treatment plan is best for her. You all may want to consider keeping a journal or a diary. My Seizure Diary: a great tool for recognizing and tracking seizures, setting reminders, managing medications & side effects, recording medical history, moods, behaviors, triggers, and other therapies or personal experiences, that may affect seizures and wellness, which can be shared with her healthcare team. It’s common for those who are in caregiver role to feel overwhelmed, but it is just as important to make sure you’re taking care of yourself as well.  It can be helpful to connect with other parents who may have similar experiences, to ask questions, find &give support to each other, by visiting:  Or contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help,hope, support, guidance, and access to national and local resources. 1-800-332-1000, [email protected]. 

I was born with epilepsy and

Submitted by Misjoey101 on Tue, 2020-04-07 - 18:58
I was born with epilepsy and went through all of high school without a seizure. But, the doctor's ultimately took me off of the meds because they thought the side effects were too bad. I was taking 1500mg in the morning and 2250 at night. It was a bad choice by the doctor to remove the Keppra and replace it with Lamictal after high school. I'm in my 20s, try not to freak out too much like my mom. It was irritating. She was meeting with my teachers every year, tracking my phone, wasn't allow to take the bus, etc. 

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