Seuizer Triggered Age: 2 years 4 months started with finger flicking and eye ball focused on one side.
After a month 1 grand mal onset happened brought the baby to conscious after intervention at hospital. After 5 months of not very bad condition suddenly he developed right side weakness and seuizer with Epilepsy partial continuea. then the case was very sever that he was admitted in hospital and IVIG therapy was given as doctor told the issue is type of brain inflammation called as Rasmussen Encephalitis. Atrophy was seen in MRI scan.
No change for next 4 month. Slowly improvement was seen but seuizers continued. Temor in right hand was felt for 8 months.
He is in poly therapy drug,
Since the seuizer continued Medicine was changed to,
6. Sodium Valporate
Dose are adjusted and we are planning to eliminate Carmabazapine as the baby is having drop attacks.
Now the doctor were telling it might not be rasmussen encephalities as it the date prognosis could have been very bad.
Still no improvement in verbal communication.
Right side weakness and no movement of hand, hardly take few steps.
Now my child is 3 years and 10 months. I am really worried what is it, why i dont have any medical answer to manage?
I have kept him in Keto diet which is somehow beneficial for forceful vomiting and steady lazy body and weight management in pednosoline.
If any one suffering from similar case please lets have conversation and make our life beautiful together.
Mother is a child from developing country Kathmandu, Nepal.