Community Forum Archive

Someone who is epileptic

Tue, 12/17/2019 - 02:04
Are there anything that you can’t do that normal people can (watch certain tv shows, play video games)? Have you ever had a seizure because of a TV show/video game? What are you thinking when you have a seizure? Have you ever had a seizure in public? What’s your favorite color? I ran out of questions.

Comments

Hi, Thank you for posting and

Submitted by Anonymous on Tue, 2019-12-17 - 09:23
Hi, Thank you for posting and for your questions. Most people with epilepsy can do the same things that people without epilepsy can do. However, some people with frequent seizures may not be able to work, drive, or may have problems in other parts of their life. For about 3% of people with epilepsy, exposure to flashing lights at certain intensities or to certain visual patterns can trigger seizures. This condition is known as photosensitive epilepsy: https://www.epilepsy.com/learn/types-epilepsy-syndromes/reflex-epilepsies Not all televisions, video games, computer monitors, and strobe lights trigger seizures. Even in predisposed individuals, many factors must combine to trigger the photosensitive reaction. To learn more about triggers for individuals with photosensitivity, visit: https://www.epilepsy.com/learn/triggers-seizures/photosensitivity-and-seizuresSeizures can take on many different forms and affect different people in different ways. Seizures have a beginning, middle, and end. The symptoms during a seizure usually are stereotypic (occur the same way or similar each time), episodic (come and go), and may be unpredictable. Not all parts of a seizure may be visible or easy to separate from each other. Every person with seizures will not have every stage or symptom described, here: https://www.epilepsy.com/learn/about-epilepsy-basics/what-happens-during-seizureAdditionally, you may always to contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, or contactus@efa.org. epilepsy.com/helpline 

Hey Mateo! I can't drive

Submitted by MaddiePiano on Tue, 2019-12-17 - 20:46
Hey Mateo! I can't drive because of my seizures, which really sucks because my friends all drive. I often have small seizures during movies when they're stressful for me, like sad moments during the movie. I have three types of seizures: GTC (unconscious,can't think), partial (can kinda think, sometimes black out), and small undiagnosed seizures ( can think just fine). When I can think when I have a seizure, if it's the small one I try to keep it under wraps as much as possible and act normal. When I have partial seizures I think about getting someone because I could black out. It's really embarrassing and scary for me when I have seizures, I like to be able to take care of myself. My worst fear is losing control of myself. I have the small seizures in public all the time, mostly I'm just good at hiding then so no one notices. My favorite color is lavender :)

Hey :)I cant drive because

Submitted by Meggo on Tue, 2019-12-17 - 22:37
Hey :)I cant drive because some of my seizure are absences. It also slightly limits my choices for the future about jobs because of this because some jobs need a driving license.I have had epilepsy for 15 years, since I was a kid. My seizures are auras, and sometimes i get absence seizures too. I have never had a convulsive seizure. No my seizures are not photo sensitive, if that is the right word.I usually feel embarrassed and when I feel a seizure coming on I try to get somewhere out of the way where  people cant see me having it and I wait until the aura has passed. Yes I have lots of seizures in public. I still get a few every day. I am on a drip every 2 months at a hospital in London as well as other meds. I have been to 8 hospitals around the UK and it is improved but still not gone.My favourite colour depends on my mood... most of the time it's pale blue. But sometimes I find myself preferring lime green. And at other times (only occasionally) I find myself preferring pink Au revoir 

Are there anything that you

Submitted by MateoAnthony on Tue, 2019-12-17 - 23:11
Are there anything that you can’t do that normal people can (watch certain tv shows, play video games)? https://wordcounter.onl/https://vidmate.onl/https://mobdro.onl/Have you ever had a seizure because of a TV show/video game?What are you thinking when you have a seizure?Have you ever had a seizure in public?What’s your favorite color? I ran out of questions.issue solved!!!

Had a small seizure because

Submitted by Misjoey101 on Fri, 2020-01-24 - 18:00
Had a small seizure because of a VERY FLASHY concert. I can;t drive. When I have a seizure, I can't think. It's like taking a nap. I'm sure normal people are much more social than I am, a childhood of seizure activity and bullying has lead me to an extreme social anxiety. Beyond that, life is normal.

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