Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Youth

Safety during sleep for a child?

06/2017 | 4 Comments

My 6yo daughter was recently diagnosed with Benign Rolandic Epilepsy (BRE). She has had two generalized tonic-clonic seizures, both right after she...
a really useful practice

06/2017 | 0 Comments

hey, ive had epilepsy for a while now, and i just felt like posting on here one of the things that has helped me deal with my seizures the best. this...
Epilepsy Awareness - Teenagers

05/2017 | 0 Comments

Hi! Id' really appreciate it if someone could please take the time to read this, it is very important to me. I have been diagnosed with epilepsy since...
My experience with auras

05/2017 | 0 Comments

Hi, I am a 19 year old who got diagnosed with epilepsy roughly a year ago. I had my first full seizure when I was 13 years old, the second and the...
Concerned Mother

05/2017 | 0 Comments

Hello everyone. New to this forum. My husband and I recently adopted a 4 year old boy who has been having seizures. We have a consultation with a...
Hope I am not crazy

05/2017 | 1 Comments

I had my first seizure last Friday at my husaband's work. I was dropping off a few things and as he was walking away from my window I guess they saw...
Body pain after seizure?

05/2017 | 3 Comments

Ever since I had a grand mal seizure about a week ago of my back and legs have been hurting. The day after the seizure I could hardly even get out of...
Device to Detect seizure while Sleeping

05/2017 | 2 Comments

Hello All, I am new with this site and Forum. My son (14yr) had his first seizure when he was 4 days old. In his early age he use to have almost 10...
Diagnosed with epilepsy

05/2017 | 1 Comments

Hello everyone, I got my first seizure at the age of 16 in November 2016. Went through MRI scan + EEG scan, everything looked normal. Just this week I...
Am I Epileptic?

05/2017 | 3 Comments

Hi there. I am an 18 year old female and I have always been in pretty good health. My one thing I've had since I was little is that I am prone to...
My life of grand mal seizures

04/2017 | 0 Comments

I had a seizure last year they are called grand mal seizures or also called tonic-clonic seizure I was born with them I started having them at 9...
Biting Tongue When I Have Seizures

04/2017 | 3 Comments

Hi everyone, before I start I just want to say sorry if I'm posting this in the wrong area but I've never really used forums before! I'm Rachel & I'm...
Muscle pain after grand mals?

04/2017 | 5 Comments

Any recommendations for muscle pain after 4 grand mals? I'm 16 and I had 4 grand mals the other day and I was wondering if there was anything that...
Seizures every six weeks?

04/2017 | 2 Comments

So I'm new here, but do read a lot of the things on here. A little background... my daughter is ten and only has seizures at night. She has some scar...
Need keppra?

04/2017 | 5 Comments

My son 7 year old had only one seizure in January while asleep. He has abnormal awake eeg and abnormal 24 hr eeg. Normal MRI. No other activity...
2 1/2 year old and Keppra..

04/2017 | 2 Comments

HI my son has been on Keppra for a few months now and it has made him so mean and moody. I don't want to say its just the Keppra because hes 2. I just...
Home alone?

03/2017 | 3 Comments

Hello, I'm a parent of a child diagnosed with benign roulandic epilepsy. He has had 2 grand mal seizures in his whole life. After the second one, he...
LGS expectancy

03/2017 | 2 Comments

My son was born with severe HIE(lack of blood/oxygen to the brain and vital organs). Suffered from infantile spasms since 6 months and now has been...

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