Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Living With Epilepsy - Youth

Unknown mark on mri scan of my 4 year old

02/2017 | 1 Comments

Hi, my daughters has suffered from seizure since been 18months old. She's had an Mri scan over a year ago and they said it was scarring on the brain...
Looking for Answers for my Boy

02/2017 | 1 Comments

My seven year old son began having unusal mood swings (going from happy to crying or happy to very angry), difficulties with attention and focus...
Tired

01/2017 | 0 Comments

I guess I still count as a youth since I'm two months shy of my eighteenth birthday, but I'll also post this in Teen Zone later. Anyways. I guess I...
Overwhelmed & concerned

01/2017 | 1 Comments

My daughter had her first seizure almost a year ago. Now her doctors say she's having both epileptic and pseudo seizures. my biggest challenge is...
Medical ID Bracelet

12/2016 | 0 Comments

Hi guys im considering getting a medical id bracelet with my name, condition and medication im on. do you guys have medical ids?
New JME diagnosis

12/2016 | 1 Comments

I'm going to apologize for my long post from the beginning, this has already been so hard and it's just begun, any insight or help will be greatly...
Can it be Epilepsy?

12/2016 | 1 Comments

Hello! I am new to this website and I came here with hopes of finding some answers. I'm not sure about what I'm having are seizures or syncope. I...
Parents Dealing With My Epilepsy

12/2016 | 0 Comments

I'm 14 years old and I came to this website because my parents don't like to talk about my epileptic seizures and so I asked one of my workout coaches...
Strong Enough

11/2016 | 0 Comments

You think I’m broken because you’ve seen it. This girl may be hurt but she’s still chosen. She’s beaten down by seizures but she’ll be open. The one...
Relocating to Denver?

11/2016 | 0 Comments

Hello, I have a son with atonic seizures. We live in the Washington DC area. At this point our 3year old son's seizures are getting worse and we have...
Panayiotopoulos - changes in symptoms?

11/2016 | 0 Comments

Hi All My daughter was diagnosed with PS at the age of 6 and is now 10. Since going on Lamictal at the age of 7 she didn't have a seizure for 2 years...
Silent seizures

11/2016 | 1 Comments

I have a 7yr old daughter who has been having seizures for about 4 yrs now. We do know that she has a brain abnormality causing them,(PMG) but hers...
How is it living with childhood epilepsy

10/2016 | 1 Comments

Hi there, My 4yr old was diagnosed of frontal lobe epilepsy in March this year. It has been a rough ride since then. We have seen a healthy, happy...
Aggression before a seizue

10/2016 | 2 Comments

My son is 20 and has had grand Mal seizures for 6 years. These are controlled by epilum and he only has a seizure roughly once a year now. He is...
Epilepsy Id

10/2016 | 0 Comments

I want to make epilepsy id online, how i can do it ?

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