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The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hi, Thank you for posting, it
Submitted by Anonymous on Wed, 2020-06-10 - 09:24
Hi, Thank you for posting, it sounds like you've been through a lot. Treatment and how the body may react to certain medications varies for each individual. The goal of treatment with medicines should be –no seizures and no side effects. However,we know that some individuals may experience too many side effects, that are very bothersome or cause other health problems: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/seizure-and-epilepsy-medicines/side-effects . It’s important that you’re continuing to advocate for yourself and express your concerns with healthcare team (that you’re comfortable with),who can help determine what individual treatment plan is best for you. If you feel you’re not getting the proper care or that you all are not receiving the answers you need or working towards the same goals, it may be time to get a second opinion. https://www.epilepsy.com/learn/diagnosis/you-and-your-healthcare-team/second-opinions You may want to consider seeking more specialized care for your epilepsy with an epileptologist,(epilepsy specialist) at a comprehensive epilepsy center. https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-center . Additionally, you may want to consider keeping a journal or a diary to help keep track of your seizures and medications. My Seizure Diary, can be used to organize health issues, record medication side effects, develop seizure response plans, and more, which can be share with your healthcare team: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . Additionally, you may always contactour 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates