Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Medication Issues

New ideas, anybody?

04/2020 | 4 Comments

Hello! I am a 25 years old girl, and have had epilepsy for 19 years now. It started as absence seizures when I was around six years old, and then...
Lamictal interactions

04/2020 | 5 Comments

Hi, I was recently diagnosed with temporal lobe epilepsy this past December. I am now taking 150 mg of lamictal twice a day. I’ve noticed my memory is...
Medication Cocktail

04/2020 | 5 Comments

It's been interesting reading about everyone's various medication experience. I am surprised that no one mentioned phenobarbital. I got epilepsy after...
no meds for refractory seizures

03/2020 | 1 Comments

I have left hippocampal sclerosis ( atrophy) Massive white matter frontal lobe lesions, Cluster seizures , aphasia, TBI and seizure disorder. I was...
Trileptal side effects

03/2020 | 2 Comments

My 4 year old had a tonic focal seizure in Jan and was put on Trileptal and was taking it for a month and had a seizure. Doctor increased the meds and...
Piracetam

03/2020 | 1 Comments

Does anyone have experience with using the drug piracetam as monotherapy or an adjuvant to their AED(s)? It is appealing, because of how long it has...
Healing from keppra

03/2020 | 1 Comments

Hey, my name is Sam and I’m 21 years of age. I caught my first seizure when I was a baby due to a high fever and caught my 2nd one at the age of 17 in...
Zonegran (Zonisamide)

03/2020 | 2 Comments

My 16 year old daughter started taking Zonegran 9 days ago and has developed many of the side effects including somnolence, fatigue and ataxia...
loss of taste from tegretol

03/2020 | 1 Comments

I was experiencing total loss of taste after starting on tegretol. My doctor asked me stop the medication but my taste did not return. I am wondering...
Keppra and Tiredness

03/2020 | 2 Comments

Hello! A quick backstory: I am 20, was diagnosed with JME at 16, and have had 3 grand mal seizures in my life. I was on Keppra (500mg x2 daily) when I...
Levetiracetam and lamotragine

02/2020 | 3 Comments

Hi, i was diagnosed with epilepsy 2 and a half years ago and i was on lamotragine however seizures continued so they decreased it to 300mg 2xdaily and...
10 year old nocturnal seizures

02/2020 | 2 Comments

Hello - my son’s neurologist is wanting to start one of the following meds for his nocturnal seizures. Keppra, Trileptal, or Vimpap. I am researching...
Vimpat Newbie

02/2020 | 1 Comments

So far. so good on Vimpat for me. I have only had a few seizures, so maybe not the best person to relate to, for those who have suffered much more...
Nayzilam or Valtoco

02/2020 | 1 Comments

Does anyone have experience with Nayzilam or plan on asking their provider about Valtoco when available?
Switching from Zonisamide to CBD

02/2020 | 1 Comments

Does anyone have experience switching from zonisamide to CBd? What dosage worked? Current dose is 500mg zonisamide. 32 year old female/ 130 pounds.

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