Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Medication Issues

Weaning off lamotrigine

07/2019 | 1 Comments

I've been taking lamictal for about 7 years now, and my doc finally agreed to let me try weaning off. I tried every seizure drug over the years, but...
Fycompa?

07/2019 | 3 Comments

Hello, My Dr. recently recommended I try using fycompa on top of my other 4 medications. I went seizure free for 5 years but have been uncontrolled...
Tomamax side effects

07/2019 | 2 Comments

Hi I'm wondering if anyone else has had issues with Topamax as I have. My heart rate has gone as high as 250 beats per minute and I'm just sitting and...
Depakote sprinkles in bowel movement

07/2019 | 0 Comments

The person I'm caring for is on divalproex sprinkles and every time I change a bowel movement, I notice what looks like the sprinkles in the stool. It...
Keppra

07/2019 | 9 Comments

Terrible side effects for us and we didn't reported to the drug company. Our neurologists said it is normal not functioning well on keppra. My...
Genetic cause for epilepsy

06/2019 | 1 Comments

Anyone else have a genetic cause for epilepsy? We've recently found out our son, 8 months old, has a single letter mutation at the GABRB3 gene...
CBD oil

06/2019 | 1 Comments

So My 3.5 year old is taking 1.5ml of Keppra & I want to know how much CBD oil she can take! she is 33lbs & is 37in tall & her BMI is 16.9%
Keppra on premature baby

06/2019 | 2 Comments

Our son was born prematurely 3 weeks ago(35 weeks). In nicu, he started having seizures and they gave him keppra. He did not have any seizures for...
Medication Reminders

06/2019 | 2 Comments

My nephew was diagnosed with Epilepsy about a year ago. The trouble is he also has ADD, which means he has all the best intentions of taking his...
Keppra and PNES

06/2019 | 2 Comments

Hi all, A brief history before getting into my issue. I was diagnosed with idiopathic epilepsy in october of 2017, started out on sodium valproate but...
Acne and lamotrigine vs. lamotrigine ER

05/2019 | 3 Comments

Hi there, first time poster, I'm recent to the seizure club, due to an oligodendroglioma. Currently on Vimpat 200mg 2x d and lamotrigine 100 mg 2x d...
Toddler on Vimpat, Please give advice

05/2019 | 1 Comments

We have changed insurances, the new insurance doesn't cover Vimpat. I am trying to get patient assistance, but am having problems since he is not 4...
Keppra and angioedema

05/2019 | 2 Comments

Anyone experience angioedema (face,lips, tongue, throat, eye swelling) on Keppra? Did it resolve on a different medication?

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