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In honor and memory of those lost to suicide in epilepsy....

Tue, 10/28/2014 - 15:20
Topic: In Memoriam

Some of you might remember me as "Kayakmom" or Mrslinkgetter from the old forums. My son is Sam and he had epilepsy, depression, and schizophrenia. He lost his battle on May 1, 2011. I do not say all of this for sympathy. I say this because I know that between 2%-32% of those with epilepsy also die via suicide. 

I stated Seizethefacts.org to raise awareness of suicide and epilepsy. As far as I am told through the EPTP and EFA I am the only organization that ties the two together. 

One of my major goals is to form a data base of people lost to suicides in order to support the families who desire this. The SUDEP organizations have done a superior job doing this. It is time to allow the support for those dealing with suicide loss from epilepsy. 

Feel free to contact me here. Start the discussion! I would love to see the banners honoring those lost at next year's National Epilepsy Walk!

 

Comments

of course people think, if

Submitted by winifredbeware@gmail.com on Sat, 2014-12-27 - 01:15
of course people think, if not thewakong up in the hospital, the medications and false hopes,and its not depression. dont play the depression card, or. group hugs, or religion. i can see myself coming closer to making a choice. I worked with

of course people think, if

Submitted by winifredbeware@gmail.com on Sat, 2014-12-27 - 01:39
of course people think, if not thewakong up in the hospital, the medications and false hopes,and its not depression. dont play the depression card, or. group hugs, or religion. i can see myself coming closer to making a choice. I worked with

2 Comments

Submitted by winifredbeware@gmail.com on Sat, 2014-12-27 - 01:39
2 Comments
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Less than a minute agomichael olsonof course people think, if not about waking up in the hospital, the medications and false hopes,and its not depression. dont play the depression card, or. group hugs, or religion. i can see myself coming closer to making a choice. I worked in the in the field a so called professionals abilities, artificial trainings. diagnoses and meaningless advice. in my mind i see my future in the abstract i see a plan, a wish. some born again sent me some horseshit in the mail. intensified my thoughts and made things worse for me. its not help one needs, not sound bites memorized from ophra or df phil. at least suicide wakes  people up from their complacency please no more . RELIGIOUS mail.fair thee well
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Less than a minute agomichael olsonof course people think, if not about waking up in the hospital, the medications and false hopes,and its not depression. dont play the depression card, or. group hugs, or religion. i can see myself coming closer to making a choice. I worked in the in the field a so called professionals abilities, artificial trainings. diagnoses and meaningless advice. in my mind i see my future in the abstract i see a plan, a wish. some born again sent me some horseshit in the mail. intensified my thoughts and made things worse for me. its not help one needs, not sound bites memorized from ophra or df phil. at least suicide wakes  people up from their complacency please no more . RELIGIOUS mail.fair thee well

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