Community Forum Archive

Hi Drinkie,  Thanks so much for posting. We are so glad to hear that you’re keeping a seizure diary: https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diaryThis is a great tool to track your seizures, record your medical history, set reminders,record side effects, moods, or other personal experiences, to share with your healthcare team. Additionally, you may want to review our seizure alert device fact-sheet with your doctor, to see if a seizure alert device is an option for you:  https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfIt’s great that you’repaying attention to your body and are able to recognize a pattern in your seizures.There are lots of factors that could contribute to your seizure cycle patterns,so It’s important that you follow-up with your healthcare team to explore this further, as well as, any changes in seizure types, frequency, behaviors, side effects and symptoms. Treatment varies for each individual, so talk with your doctor about rescue or “as needed medication”, to see if this is an option for and your individual treatment plan. https://www.epilepsy.com/learn/managing-your-epilepsy/using-rescue-treatmentshttps://www.epilepsy.com/article/2019/2/cyclic-patterns-found-epileptic-seizures Men living with epilepsy may also experience health concerns that are unique to their gender. Learn about some of the epilepsy related health issues men should be aware of and respond to, here: https://www.epilepsy.com/article/2018/6/june-men’s-health-month https://www.epilepsy.com/learn/special-populations/men-and-epilepsyManaging these issues with your epilepsy team can help improve seizure control and your quality of life.  It may be helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Contact your local Epilepsy Foundation: epilepsy.com/localsupport   to find support groups, events, and programs in your community.Additionally our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org, can assist in connecting you to resources, provide referrals and additional support.  epilepsy.com/helpline  

I've had epilepsy all my life (50+yrs) and yes I've notice seizures happen on a regular cycle.  They don't happen in between specific date but happen about every 4-5 weeks.  It's incredible and you wonder why a therapy cannot be developed to suit such regularity.

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