Hello everyone, im new here. I wanted to share my story and see if anyone had been in a similar situation. I've had epilepsy since I was probably around 15 im now 31. My reason for writing is because I've been feeling low since having my first seizure in nearly 5 years.
Basically 5 years ago I was not very good at taking my epilim (sodium valproate) and I had a seizure while in the middle of being intimate shall we say with my fiance. I believe the trigger was being woken up as I had been asleep and this had happened before a few years prior before I was on meds. I then had a couple more seizures a few month later while taking weight loss suppliments while my partner was pregnant. Again I believe I was not taking my meds properly.
Now nearly 5 years and 2 daughters later I had been fit free. I had been more confident with drinking alcohol and thought I found a safe point where I could drink have fun with no repercussions say about 5 pints, and I made sure I took my epilim....
Until last week I was stuck in London for the evening with a broken down car.... I missed my dose of epilim that morning too and have been really bad with taking it any other morning to be honest.... I Had non that night and non for the next morning either. I drunk about 10 pints over 9 hours With a work colleague and had 4 hours sleep... I decided not to go to work and got towed home as I felt worried about something happening which eventually did. I did find an old tablet in my car that had been out of the blister pack and had swollen up which probs diddnt count for much but thought I'd take it as better than nothing.
Then took a proper tablet when I arrived home around 6 hours later. I had about 1 litre of water in the last 24 hours so problely very dehydratrd too. Then at around 4pm that evening while in the living room with my family I collapsed and had a convulsive seizure. Luckily my 4 year old saw nothing.... i feel so bad because I put my partner through all this and risked my kids seeing it happen to me.
I have been told I'm lucky to have it as well controlled like I do. Would you guys say the same?
I suppose thats where i have become complacent. I literally diddnt think at all about the chance of me having a fit.
I've missed out on celebrating my 18th, 21st 30th all the lads holidays drinking and partying so i would thought it would be eaiser to accept and live a sensible lifestyle now I have a family but I just feel really low as I thought maybe I had grown out of it possibly and also I feel I've let my family down.... I also have been worrying what if I pass this on to any of my girls.... if anyone has any advice or wise words for me about anything I written I thank you in advanced. Sorry for the long post.