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The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Conscious through grand mal

Sun, 04/05/2020 - 22:53
Hi everyone. I’m new here. I’ve had epilepsy for almost 25 years now and I’ve never talked to anyone who has been awake for a grand mal seizure before. My seizures are controlled by Lamictal and Depakote. My most recent seizure was probably about 7 years or so ago. All my seizures up until the last 2 I had, I was completely conscious through. As I’m sure you can imagine, it’s horrible to say the least. Has anyone ever experienced the same thing? And if so, do you know the reason or is it in a certain part of the brain that would make that happen. I just don’t understand why for 20 years every time I had one I was conscious through, except for the last couple. I woke up and the people I was with told me I had had a seizure. Luckily my medication has been working. Thank the lord for modern medicine!!


Hi,Thank you for posting, it

Submitted by Anonymous on Mon, 2020-04-06 - 09:01
Hi,Thank you for posting, it sounds like you’ve been through a lot. We are happy to hear that your seizures have been well controlled with medications for the past 7 years, we wish you many more years of seizure freedom ahead! Seizures can take on many different forms and affect different people in different ways. To learn more about the various types of seizures, and commonly report symptoms, before, during & after a seizure, visit:

Seems like you are staying

Submitted by Paulf_5a363f10272a7 on Wed, 2020-04-15 - 10:10
Seems like you are staying positive anyway which is good. Having changes in your epilepsy is worrying at 1st but you will be fine as you say with the meds and make sure to take them on time not like me. With the changes I went from nocturnal epilepsy to if I was missing meds I could have a day seizure. Then if I was over tired I would have a absence seizure at very rare occasions. The point is epilepsy can change but keep positive and as you say meds is the key. Stay safe. 

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