Community Forum Archive
Pseudoseizures
Tue, 06/09/2020 - 05:59Topic: New to Epilepsy.com
Did anybody heard about pseudoseizures? I m thinking i m.having.them because i haven t heard anybody to have seizures.like me. I m also a.nurse.and i did t saw any patients with seizures like.me. so my seizures are like this: i m alaways having an aura/fear that seizure is gonna happen. Then i m having some jerkings/ lips moving for 1 minute. But i m aware about what's happening, i can see, hear is just that i can't stay concentrate to having a conversation, i can t talk, my only answers are yes or no.. but in same time i m writing on my phone calendar date and time when i m having the seizure.. is wierd.. nobody except for me is aware i m having a seizure... I m taking tablets that are not working.. i m sure that i m also having depression/anxiety.. but not treatment for those... I m taking levetiracetam and carbamazepine.. but no results.. i m sure this is not a propre epilepsy.. did anybody agree with me?.thanks
Comments
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Nobody here can tell you
Submitted by Patriotrehab on Fri, 2020-06-12 - 21:25
Nobody here can tell you whether you are having seizures of PNES. The only way to know for sure is to get an extended VEEG study done. This can be done if you go to a comprehensive epilepsy center and are seen by an Epileptologist. Ask your treating neurologist to refer you for a VEEG because you suspect that you may have PNES instead of epilepsy. It’s better to get diagnosed earlier than later. I’m a licensed clinical social worker as well as a person with epilepsy and I’ve treated clients with PNES. I’ve posted on the forum many times about what I think about treatment and show people the statistics, etc, but the bottom line is as many as half of those diagnosed with PNES stop having their events as soon as the diagnosis is confirmed and another half show improvement in as little as three months of psychotherapy no matter what type is used, but it may take longer to stop having symptoms all together. For the remainder, well some still have their symptoms. But, psychotherapy is the treatment that works for those that have PNES and the gold standard for diagnosis is an extended VEEG.
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Submitted by moni lisa on Tue, 2020-06-09 - 09:57
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