Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: New to Epilepsy.com

Otharah syndrome

09/2019 | 2 Comments

My 2 month old was born with seizures and the doctors labeled her with otharah syndrome. I have read up on it and one thing that I couldnt fine is if...
Infantile Spasms

09/2019 | 1 Comments

My son was diagnosed with Infantile Spasms when he was 5 months old. He was hospitalized for 6 days and did a 4 week treatment of ACTH. He immediately...
Advice please.

08/2019 | 1 Comments

Hi. My name is Candace. I'm a 36 year old single mom. About three years ago I started having these episodes. I call them that because no one was...
Some advice please.

08/2019 | 3 Comments

Hi. My name is Candace. I'm a 36 year old single mom. About three years ago I started having these "episoded". I call them that because no one was...
Myoclonic seizures

08/2019 | 1 Comments

My 12 year old son was diagnosed with nonintractable generalized idiopathic epilepsy without status epilepticus after presenting with myoclonic jerks...
13 YEAR OLD DAUGHTER 1ST EPISODE

08/2019 | 3 Comments

Hello, My daughter has had 2 seizures over the summer. Both were grand mal & both times were in the shower. Her father has a history of seizures but...
My first seizure

08/2019 | 2 Comments

I had my first seizure ever 4 days ago. I just woke up in the ambulance without any recollection. Last thing I remember was cleaning. Blood work came...
Medication Withdrawal

08/2019 | 1 Comments

Hi there! I've got a few questions about people who have JME and their experiences with AEDs, more specifically, with medication withdrawal. A bit of...
1st Seizure at 30 years old, advice/help

07/2019 | 2 Comments

Hello, My name is jenifer, 30 years old, mother of two girls. A week and a half ago, friday night i get in bed to go to sleep. I wake up the next day...
New to seizures, need advice

07/2019 | 1 Comments

Hello, This is embarrassing to say but I do need advice, I've recently been having seizures, I only get them during masturbation, I've had 3 seizures...
Booked an Appointment

07/2019 | 7 Comments

Hello, I must start by saying I have not been diagnosed with epilepsy, because I’m be never told anyone about my experiences. I first remember...
Did I cause nerve damage to my tongue?

06/2019 | 5 Comments

So I suffered what I think was grand mal this past Sunday (or at least I think it was, I was completely alone and I was discovered in the middle of...
Epilepsy and sleep disorders

06/2019 | 1 Comments

Good morning, I am a student of nursing and I am doing a work on the relationship between epilepsy and sleep disorders. I found some information on...
Explaining EEG

06/2019 | 1 Comments

Hi All, I'm wondering if anybody can explain the results of my EEG for me? The report says 'the background activity showed bilateral and symmetric...

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