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BRE and Drool

Thu, 04/30/2020 - 18:45

Topic: Parents & Caregivers

Looking for input from other BRE parents, My kid is drooling a lot during the day, especially when he's had a hard time sleeping the night before. No other noticeable seizure symptoms. Thoughts? I have mentioned it to my doctor while in EMU and they didn't seem to think it was anything of consequence btw. (It has got worse since COVID-19 quarantine started) Thanks any help would be appreciated

Comments

Hi, Thanks for posting. It's

Submitted by Anonymous on Fri, 2020-05-01 - 10:21

Hi, Thanks for posting. It's important that you all are continuing to follow-up with your child’s healthcare team to explore this further. It’s also important to address any changes in seizure types/frequency, side effects, symptoms, mood or behaviors. Many clinics and offices are now offering telemedicine options for non-emergencies if you're unable to see their doctor in person currently. Ask the doctor’s if you can schedule a time to talk via phone/ other telemedicine resources you all can utilize, or if they can make any additional recommendations for you all. It may also be helpful to keep a journal or a diary to help keep track of any symptoms you notice (like excessive drooling), organize health issues, track seizures & triggers and more which can be shared with members of their healthcare team. They can help identify or recognize any patterns, which may allow you all to modify (if needed) the treatment plan, behavior, or lifestyle, as appropriate. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . It’s common for those who are in caregiver role to feel overwhelmed.It’s important to remember that you are not alone, and that you’re taking care of yourself and making your health and overall well-being a priority. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf. It may also be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents . Additionally,you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance,and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates

Hi, Thanks for posting. It's important that you all are continuing to follow-up with your child’s healthcare team to explore this further. It’s also important to address any changes in seizure types/frequency, side effects, symptoms, mood or behaviors. Many clinics and offices are now offering telemedicine options for non-emergencies if you're unable to see their doctor in person currently. Ask the doctor’s if you can schedule a time to talk via phone/ other telemedicine resources you all can utilize, or if they can make any additional recommendations for you all. It may also be helpful to keep a journal or a diary to help keep track of any symptoms you notice (like excessive drooling), organize health issues, track seizures & triggers and more which can be shared with members of their healthcare team. They can help identify or recognize any patterns, which may allow you all to modify (if needed) the treatment plan, behavior, or lifestyle, as appropriate. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary . It’s common for those who are in caregiver role to feel overwhelmed.It’s important to remember that you are not alone, and that you’re taking care of yourself and making your health and overall well-being a priority. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf. It may also be helpful to connect with other parents who may have similar experiences, to ask questions, find & give support to each other, by visiting: https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/parents-helping-parents . Additionally,you may always contact our 24/7 Helpline, where trained information specialists are available to answer your questions, offer help, hope, support, guidance,and access to national and local resources. 1-800-332-1000, contactus@efa.org. epilepsy.com/helpline  , or contact your local Epilepsy Foundation: https://www.epilepsy.com/affiliates

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