Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

Overwhelmed by son's recent diagnosis

02/2020 | 2 Comments

Our 9 year old son was diagnosed in November with partial complex Epilepsy. He started having seizures in Sept/Oct, but they were mild at first and we...
How To Deal

01/2020 | 3 Comments

Hi everyone- My son suffers from focal seizures and his symptoms change with every episode. I am just reaching out to see how other parents/caregivers...
Young adult children and sitters

01/2020 | 1 Comments

Does anyone have any recommendations for a 20 year old in need of occasional supervision in Montgomery County Maryland. When his meds is adjusted he...
Coping with seizures

01/2020 | 2 Comments

Hi everyone, I am new to this forum. My daughter is 6 years old and she has been having seizures since she was 8 months old. She has tonic clonic...
autistic son not consuming meds

01/2020 | 1 Comments

I got this email from a friend: Do you think you could ask a question to the Epilepsy Foundation. How to get an autistic person to take his meds...
Sending a teen away to college

01/2020 | 2 Comments

My daughter is 17 and will be going away to college in the fall. She plans to go 8-16 hours away as they are the only schools that offer her desired...
Here i am again

12/2019 | 2 Comments

Our 28 year old son is considered stable since his seizures are only every few months to 2 years or so. Just enough to create havoc since he lives and...
Coughing after seizure

11/2019 | 1 Comments

Does anyone have a child who coughs for several minutes after seizures? If so, do they have TLE?
Side Effect of Tegretol in kids?

11/2019 | 1 Comments

My son started having focal seizures second day of his life. All his test results were normal and DNA results show one variance in one gene but they...
How do I

10/2019 | 4 Comments

My now 17 year old son suffers from Absence seizures and is resistant to all medication. He has at least three seizures per week. At this point we are...
New with question

10/2019 | 2 Comments

Hi everyone. I am brand new here not sure if I belong here or not just yet. So today by my (14 years with autism, ADHD, and Tourette’s) saw a...
Has anyone experienced this?

10/2019 | 3 Comments

My 2 year old daughter was just diagnosed with epilepsy. Every time we are in the car, she has a seizure. She also has moments where she will hold her...

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