Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

Side effects of Keppra in 7 year old

12/2018 | 1 Comments

My daughter has been taking Keppra since January. When she initially began Keppra, and we had our 3 month appt with the neuro, we asked the neuro if...
WEANING TODDLER OFF KEPPRA

12/2018 | 7 Comments

Hi there! I just joined this forum and was curious if any of you had experience with Keppra? My son had 3 seizures back to back when he was 3 years...
Seizure Forecasting Band

11/2018 | 2 Comments

Hi everyone, I am currently in my junior year of college, attending Lehigh University. I am taking an Entrepreneurship class, and chose to focus my...
VPS Shunts

11/2018 | 1 Comments

Hello, I'm new to this forum and am hoping to get some answers or find someone who has had a similar experience as my family and I are grasping at...
Need help! please read & comment

11/2018 | 2 Comments

Topic: Diagnostic Dilemmas and Testing Hey everyone. I could really use some advice on what to do for my two-year-old son. It’s a long story, so here...
72-hour EEG

11/2018 | 0 Comments

My son is on day one of a 72-hour ambulatory VEEG. He's hanging in there, but not happy and feels like it's going to be a LONG 72 hours. Any tips for...
Newly Diagnosed

11/2018 | 4 Comments

Hi- My daughter is 8 and was diagnosed with absence seizures yesterday. It was only a week ago I was sure something more than daydreaming was...
My 3 year old daughter

10/2018 | 3 Comments

Hello, My daughter has intractable epilepsy. She is currently on Vimpat, Felbamate, Phenobarbital, and Clonazepam. We have noticed after felbamate she...
Worried about my son

10/2018 | 4 Comments

My 8 year old son was diagnosed with epilepsy at age 2. He has nocturnal epilepsy. But has been doing well. His teacher called yesterday saying he has...
Suggestions for my 5 year old daughter

10/2018 | 3 Comments

Hey everybody my 5 year old daughter has been struggling since birth with seizures since a birth injury of hypoxia causing brain damage, developmental...
Devices apps

10/2018 | 1 Comments

Our son, 14, was diagnosed with tonic clinic seizures that accure mostly in his sleep. Has anyone tried monitoring devices? We are looking at a few...
Epilepsy and Chiropractic care

09/2018 | 0 Comments

Hi All My Maggie has been having seizures off and on for at least a year. We have no official diagnosis and some docs have said shes faking it. Shes 3...
Recently diagnosed daughter.

09/2018 | 3 Comments

Where to start, my daughter age 14 has been recently diagnosed with IGE. Idiopathic Generalized Epilepsy. So recent that her first tonic-clonic...
Medication/Sideeffects

09/2018 | 3 Comments

Hi everyone this is my first time on this chat, my daughter was diagnosed with Absance Seizures last year she is 8 years old. She started off on...
Strobe Light Warning Website

09/2018 | 0 Comments

Hello Everyone! I have recently created a website for people with Epilepsy, Photosensitivity, and sensory disabilities. It was created to provide...
New to all of this!

08/2018 | 1 Comments

Hi. I am new here, and new to epilepsy in general. Earlier this year, my 19 year old daughter was diagnosed with JME. It probably surfaced about 3...

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.