Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents & Caregivers

Newly diagnosed- 5yrs old

05/2018 | 3 Comments

Hello, I’m new to this site as my 5 yr old was recently diagnosed with generalized epilepsy. I’m trying to understand how they diagnosis cane about...
Living with a Nightmare

04/2018 | 3 Comments

Hi, I am the parent of an autistic 15 year old that has seizures that result in very scary violent episodes. He is well over 300lbs due to meds. What...
Terrible twos or keppra side effects?

04/2018 | 3 Comments

Hello! I have never posted on one of these before but I need some advice. My son has been taking Keppra since March 17th( so about 6 weeks). He has 1...
Daughter just got diagnosed

04/2018 | 6 Comments

My daughter is 3 years old and just got diagnosed with Epilepsy.. she started having seizures Sunday, got diagnosed Monday night and has been having...
Youth mentoring?

04/2018 | 2 Comments

No idea what forum to post this in but maybe parents are best source. I am wondering if there is anything like Big Sisters out there specific to youth...
Raising meds before eeg

04/2018 | 1 Comments

Hi all I’ve written on here a few times, my son has what is believed nocturnal seizures. He is on a Trokendi XR. The dr raised his meds back in...
Teeth

04/2018 | 2 Comments

So I have this question to everyone. My daughter had a dentist appointment checkup this morning for her cleaning and the roads were awful by us. Well...
Parent of teen with a new diagnosis

03/2018 | 3 Comments

Hi - my 17 year old had her first and only seizure this summer. It was terrifying, but she received terrific care from first responders and Buffalo...
Multiple seizures in baby

03/2018 | 1 Comments

My son has had multiple myoclonic seizures a tonic clinic seizure, and a partial. He is about to turn 10 months old and is currently taking 3.5mls of...
Question

03/2018 | 6 Comments

So my daughters neuro put her on melatonin I think last month at 5mgs. It worked for a couple of days and then it hasn’t really worked. They put her...
Non convulsive epilepsy

03/2018 | 4 Comments

Finally after all the testing and describing different “episodes” and after an increase in anti seizure meds that made the bed wetting stop. The...
Clonic tonic teen daughter

03/2018 | 2 Comments

About 7 months ago my 15 year old started having clonic tonic (grand mal) seizures every 4 weeks almost to the day and time. She always has them about...

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