Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Prolonged seizure, post-ictal state

Thu, 10/24/2013 - 23:37
I was diagnosed with having a seizure in July. I am 50 years old. I had seen my psychiatrist and he told me later that I had been "acting odd", although he really couldn't define why he felt that way. I fell when I stood up, no injury, and I left the office. From there on, I can't remember. I was told that I went to my car in the parking lot, called my father on my cell and told him that I was in a location (not where I was) and that I needed a ride. He said he tried to question me but I hung up. Then I went back to the doc's office. I was told I was talking strange. Then the police came. I had left the car running with my purse in the unlocked car. Someone called the police worried about an possible abduction. At some point I left the office and was looking under chairs in the lobby. Someone brought me back to the office and stayed with me until my father came to pick me up. He drove me to the ER. I "came to" late the next day, over 24 hours later. I had had an 2 MRIs, a CT scan, blood work and an EEG during that time that I had no memory of. I slept most of the next two days, still in the hospital. The only thing that was abnormal was the EEG, which showed activity in the left temporal region. I was already on Lamictal for my bipolar disorder, so they just kept me on that until my next visit. When I saw the neurologist as an outpatient, he told me that I might have temporal lobe epilepsy and that I had a seizure. He said I could take an other med (Vimpat) if I felt I needed it. WTF? I had been having auras for years but didn't realize that was what you called them. In any case, I'm not getting answers from him, he only saw me for 5 minutes in the office the other day. I am going to get another neurologist, one who specializes in epilepsy. In any case, I haven't read anything online that talks about seizures that last more than a few minutes with some confusion after. What part was the seizure, and what part was the confusion/recovery? Had anyone else experienced anything like this, the prolonged, involved seizure event? I'm terrified of having another one, and with my doctor telling me that I should call if I felt I needed to increase my dose, I have no idea what to do next. Any suggestions would be appreciated!

Comments

Re: Prolonged seizure, post-ictal state

Submitted by Nerak95 on Fri, 2013-10-25 - 01:06

Yeah, seizures can vary in length as you can attest to.  Since Lamictal is also a seizure drug, I would think that the neuro would want to increase that a little to see if it helps with any further episodes, not to mention the auras you've been experiencing for quite some time.  I certainly would try that instead of starting another AED.

You don't mention how long you've been on Lamictal.  I wondered if the auras that you've had for some time developed into the seizure episode you had when you began the Lamictal. The reason why I say this is because when my daughter was on Lamictal, her seizures got worse.  Just food for thought if the Lamictal is relatively new.

Karen

Yeah, seizures can vary in length as you can attest to.  Since Lamictal is also a seizure drug, I would think that the neuro would want to increase that a little to see if it helps with any further episodes, not to mention the auras you've been experiencing for quite some time.  I certainly would try that instead of starting another AED.

You don't mention how long you've been on Lamictal.  I wondered if the auras that you've had for some time developed into the seizure episode you had when you began the Lamictal. The reason why I say this is because when my daughter was on Lamictal, her seizures got worse.  Just food for thought if the Lamictal is relatively new.

Karen

Re: Prolonged seizure, post-ictal state

Submitted by juggler63 on Fri, 2013-10-25 - 13:53
Thanks for your response. I had been on Lamictal for about 6 years. I don't remember how long I have been having the auras. Do the auras always lead to seizures, or can they exist on their own? I just got a call that my Vimpat has raised my blood levels of Lamictal so will be lowering that and increasing the Vimpat. This is so confusing and frustrating.

Re: Prolonged seizure, post-ictal state

Submitted by Nerak95 on Sat, 2013-10-26 - 17:16

Some auras can lead to other types of seizures.  That's why it's important to mention this to your neuro.  I've known a couple of people that have used biofeedback when they feel an aura coming on. They'll go to a quite place and just meditate.

Interesting that your doc things the Vimpat raised the Lamictal levels.  I haven't read that there were any interactions between the two drugs.  Were the levels that were taken recently and those levels taken before drawn at the same time?  Drawing blood at different times of the day can result in different levels.

Vimpat was a good drug for my daughter, however, she experienced syncope when we were increasing it and we had to come off of it because she fell too many times.

Karen

Some auras can lead to other types of seizures.  That's why it's important to mention this to your neuro.  I've known a couple of people that have used biofeedback when they feel an aura coming on. They'll go to a quite place and just meditate.

Interesting that your doc things the Vimpat raised the Lamictal levels.  I haven't read that there were any interactions between the two drugs.  Were the levels that were taken recently and those levels taken before drawn at the same time?  Drawing blood at different times of the day can result in different levels.

Vimpat was a good drug for my daughter, however, she experienced syncope when we were increasing it and we had to come off of it because she fell too many times.

Karen

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.