Community Forum Archive
Hospitals and Clinics Opening Up- Share your questions/concernsThu, 05/21/2020 - 08:05
I hope you've stayed safe and are doing okay in the past few months. As restrictions around the US, and in other countries, are lifting, many hospitals and clinics are restarting in person visits, tests, or admissions to the hospital. Many epilepsy centers are opening up too for 'elective' admissions. This may include being admitted for testing to see if someone has epilepsy or to find out where seizures start with EEG monitoring. Testing to see if a person could have surgery may be done and some surgeries are also being scheduled.
Some people are nervous or have questions about going for visits or being admitted to a hospital - we've been told for weeks to stay away unless it's an emergency to avoid risk of COVID-19. Yet it's important that people get the care needed for best control of their seizures/epilepsy.
We'd like to know what questions or concerns you have now about getting care for your epilepsy. This information will help us address your questions through epilepsy.com. We'll share concerns (no names, just concerns) with health care professionals and groups working to help people with epilepsy too.
Thanks for sharing your story and concerns. If you have an immediate concern or problem, please call the Epilepsy Foundation 24/7 Helpline at 1-800-332-1000
I’m a licensed clinical
Submitted by Patriotrehab on Thu, 2020-05-21 - 20:14
I’m a licensed clinical social worker as well as a person with epilepsy. I don’t have any personal concerns and I am personally looking forward to seeing my doctor in person and getting some of my tests done that I need as I know he is too based on our telehealth visit that we had last week, but some of the concerns that I hear from others that I work with professionally include:1. What will the hospitals do to screen people prior to admissions?2. Will I be allowed to have my caretaker (e.g. driver) with me for my outpatient visits?3. Will I be allowed visitors for my extended VEEG monitoring?4. Are the staff being screened for COVID-19?