Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

New and just trying to not feel alone.

Mon, 05/18/2020 - 02:22
Hey everyone im new to this site iv browsed it a few times but this is my first time posting. Im a 28 year old guy been having grand mal seizures sense i was 13 it was Christmas eve and i was playing a video game the next thing i knew i was fading in and out of reality seeing rainbows and feeling numb till i found myself in the ER trying to walk out of my room with needles being ripped out of me. I had a total of 3 grand mal seizures that night from what i was told. The next was in school the day we started back after Christmas and the rest is history i was made to feel like i should just off myself and i wasn't going to amount to anything witch didn't help my mental state over the years iv had both friends,family and relationships leave me over my seizures and with me writing this i just got tried of feeling alone so hello everyone it's nice to meet you all.


Hi,Thank you for posting and

Submitted by Anonymous on Mon, 2020-05-18 - 09:13
Hi,Thank you for posting and for sharing your story, it sounds like you’ve been through a lot. It's important to remember that you are not alone & we do have resources available that can help. If you ever need to speak with someone immediately, please contact the national suicide prevention lifeline: 1-800-273-8255, or our 24/7 Helpline: 1-800-332-1000, where trained information specialists are available to answer your questions, offer help, hope, support, guidance, and access to national and local resources . We understand that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being,social and emotional health. . One of the most important things to help you live with epilepsy is to find a support network. The Epilepsy Foundation has many resources available that can help you find your support network. Contact your local Epilepsy Foundation Contact your local Epilepsy Foundation, here: , orcontact our 24/7 Helpline. Posting in our forums like you’ve done or talking with others via our online chat room are also great resources for finding support as well. . Additionally, you may want to consider participating in treatment, seizure and lifestyle management programs, that can help people with epilepsy learn skills to better manage their epilepsy and its effects on daily life: . It’s important that you’re continuing to follow-up with your healthcare team who can work with you to help determine what individual treatment plan is best for you. Be open and honest about how you’re feeling, and how this is affecting your health and daily life. . You may also want to consider keeping a journal or a diary to help track your seizures and document how you’re feeling. My Seizure Diary can be used to organize your health issues, track seizures,manage medications, other therapies, or personal experiences and more, which can be shared with members of your healthcare team:  

Hi! Welcome!  My name is

Submitted by quida1017 on Tue, 2020-05-19 - 18:57
Hi! Welcome!  My name is LaQuida and I'm 35. I'm new to the site and the community too. Joined 3 weeks ago. Well, that's sad that they turned their back on you and abandoned you. Thank you for sharing your story and I just want to tell you that you are worth it and loved by God and us as a community. We are like family here. Finally, I have my story on here called Introduction To My Story And Life. 

Epilepsy is idiopathic. 

Submitted by irangel on Thu, 2020-05-21 - 00:17
Epilepsy is idiopathic.  Please, for your sake, explore  for it  may, or may not, give you answers.  Good luck,Irma

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