Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hi, Thank you for sharing
Submitted by Anonymous on Mon, 2020-05-11 - 09:16
Hi, Thank you for sharing your story. We understand it can feel very frustrating and upsetting to have a seizure after not having one for so many months. We are glad to hear that people who were around you when this happened were able to keep you safe. It's important that you’re continuing to follow-up with your healthcare team and addressing any changes in seizure types/frequency, side effects, symptoms, moods or behaviors. Being diagnosed with epilepsy can be upsetting and make you feel isolated and alone,but it’s important to remember that you are not alone, and we are here to help support you. We understand that living with epilepsy is more than seizures, it also means learning how to handle the way epilepsy affects your life including your physical well-being, social and emotional health. https://www.epilepsy.com/living-epilepsy/healthy-living/emotional-health . The Wellness Institute: epilepsy.com/wellness , has many helpful and easy-to-use tips & resources for maintaining a healthy lifestyle and maximizing the quality of life for you& your family. For practical & effective strategies to enhance your well-being, learn more here: https://www.epilepsy.com/living-epilepsy/toolbox/wellness-support-tools . Additionally, many support groups & events are being offered virtually now, contact your local epilepsy foundation to get involved or for help getting connected to resources.