Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

I'm a writer, and I need your help. :)

02/2016 | 2 Comments

Hello! My name is Mary, and I'm an author of speculative fiction - fantasy, sci-fi, steampunk, etc. My current work in progress is near-future science...
Husband lost everything

01/2016 | 2 Comments

My husband had brain hemorrhage in 2010 which he take alot of medication also resulted in memory loss, very confused so unable to work. He has just...
My story #daretodream

01/2016 | 2 Comments

Hi my name is Sarah. This is long one so be prepared. My journey starts at age 14, I was in highschool and things weren't looking too good. The public...
AT LEAST ITS NOT CANCER!!!!

01/2016 | 0 Comments

A life with seizures is nothing to enjoy, for since age 4 they have been affecting my life in ways that sometimes made dying seem better than having...
#Dare to get into army.

12/2015 | 0 Comments

I was 17 when i was diagnosed with Photosenstive epilpesy, and well it rocked my world pretty badly, it took some time to deal with it all, but i've...
Epilepsy Documentary for UT Students

12/2015 | 0 Comments

Hi all. I work with Elephant Productions and we are creating a documentary about epilepsy for the University of Texas Biomedical Sciences students...
My 2 years old son

12/2015 | 0 Comments

Last June, my son have his first seizure, and getting more frequent from monthly, weekly to daily. The worst scenerio is having 5 seizures a day and...
Raising Awareness by Facebooking

11/2015 | 4 Comments

Hi all, During this month of November I have really been putting myself out there :) First, I didn't know how to handle raising awareness alone...
Memory problems

11/2015 | 3 Comments

Hi, I'm 49 yo and have been diagnosed with left temporal lobe epilepsy. I have a strong problem with short term memory but long term memory I can...
My Child suffers from Epilepsy !

11/2015 | 1 Comments

Hello! This account was created by my son as i want to ask few questions regarding my daughter. Sorry for my bad English. She suffers from epilepsy...
#DareTo Continue my Education

11/2015 | 0 Comments

I'm an epileptic and a kick as engineer for one of the top engineering companies in the world! I've had epilepsy since the 9th grade and despite it...
JME EPILEPSY AND SLEEP

11/2015 | 1 Comments

hi i have a question, i am on levetiracetam 500 mg 2 times a day since last 5 years. But recently i have noticed that i get tired too easily and i...
Cycling anyone

11/2015 | 1 Comments

Hello, I am an avid cyclist and will like to connect with other cyclist suffering from epilepsy to share/learn sfae techniques etc. I am back in the...

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