Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Unfortunate Newbie

12/2019 | 1 Comments

I am 59 and recently had back to back Tonic-clonic seizures and a few focal aware seizures. I have never had a seizure before, at least not that I...
Childhood Absesnce Epilepsy

12/2019 | 2 Comments

My 8 year old daughter was diagnosed with CAE in August this year after having a grand mal seizure at school. She had an EEG done which revealed the...
Epilepsy in College

12/2019 | 2 Comments

Bio: Hi, I'm new to this forum so I thought I'd share my story. I was diagnosed with epilepsy 5 years ago, my freshman year of high school. I was...
Seizures

11/2019 | 2 Comments

My daughter (6)was at school on Sept 19th and started getting confused and said she had the scardies. She not anyone in the family has history of...
Happy or Safe

11/2019 | 1 Comments

I was diagnosed with Tonic Clonic epilepsy at 10 and at 18 had my first status epilepticus episode, it lasted 4 days. I take 200mg's of lamictal-XR...
Seizures

11/2019 | 4 Comments

Hi! I'm a middle schooler and I have dealt with Epilepsy for 4 years, I had been seizure-free for 3 years and I just recently had another one. it was...
Keto Diet and Epilepsy

11/2019 | 2 Comments

Anyone's experience with Keto Diet and Epilepsy? I want to know if someone has experience to share with me please.
Single and Epileptic in NYC

11/2019 | 1 Comments

I wrote an article about what it's like to live with epilepsy on https://medium.com/@elizabeth.s.roldan I’m a 36-year-old female who lives in New York...
First time.

11/2019 | 1 Comments

Hi all, I'm Todd and have TLE and CPS. I have had surgery for this and tried several meds all to no avail.
my Story

11/2019 | 6 Comments

Hi everyone, for the past three years, every 6 months or so my husband (45) would have an episode lasting a few hours where he would be completely...
Is VNS Better For Dual Or Tonic-Clonic?

10/2019 | 1 Comments

Hi everyone, My girlfriend and I both have epilepsy (she has dual, I have tonic-clonic) and we have considered undergoing surgery for the VNS. If so...
Atonic drops

10/2019 | 1 Comments

Hi I've noticed over the last few weeks that l am getting sudden drops while out walking. Well l used to get the odd one, but they seem to be...
My story. Can anyone help me please?

10/2019 | 4 Comments

Hey! My name is Ella, and I'm 15 years old. I started having seizures when I was 9 months old. They were only brief abscences, but I was never fully...
Need help with brain fog

10/2019 | 2 Comments

I was diagnosed with epilepsy since the age of 8. I use to get petti mal which is a starring spell and grand mal which is like holding a live electric...
Epilepsy - the up sides

10/2019 | 3 Comments

Tried to share my story, but "sorry invalid content" was all I could get from it. I'll share those upsides when I figure out how to enter a valid...
Ranting

10/2019 | 3 Comments

I am 28 this year. I have epilepsy since I am 23 years old. At the point of time, I am taking my Bachelor's degree. Before have epilepsy, I was able...
I"ve fallen and I can't get up

10/2019 | 2 Comments

I am moving. I don't know people around me. Paranoid Mom wants me to have alert for falls. They are ugly. I like pretty jewelry. Advice? Brand...
Medic alert tatoo

10/2019 | 0 Comments

I had a problem with my medic alert chain breaking. It got expensive and the things were ugly. I solved the problem with a tattoo and it has helped me...

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