Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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First Time Seizures

08/2019 | 2 Comments

Almost 2 weeks ago, I had my first seizure at 41, while driving home from work. I wrecked my car and was taken to the emergency room(Where I later had...
Viral infection

08/2019 | 2 Comments

Hi I’m after a bit of advice or wondering whether anybody has shared a similar experience, my nephew is currently in hospital he is nearly 4 years old...
The Big "E"

07/2019 | 1 Comments

I had my first seizure before the age of one. I had 2 more grand mal seizures by the age of 5 and no one knew why. I don't know if any of you have...
Epilepsy and protein shakes

07/2019 | 1 Comments

Hi everyone Just wanted to get a sort of view with anyone who goes to the gym that uses protein for weight loss while eating healthy & working out.. I...
PNES and Migraines

07/2019 | 1 Comments

About 3 months ago i noticed i was getting migraines and around the same time my wife noticed my first siezure in my sleep. This could have been going...
Absence Seizures

07/2019 | 2 Comments

So I go to my primary care Dr, I go in for memory loss and feared dementia. So blood tests and other written tests he doubted it was dementia, he...
15 minute grand maul seizure

07/2019 | 1 Comments

I had a 15 minute grand maul seizure and went into status epilepticus in front of my 9 year old daughter. Very scary. It was my first seizure that...
BackTENS and childhood epilepsy.

07/2019 | 1 Comments

I had childhood epilepsy and stopped having seizures when I was around 11 years old. I am now 22. I was diagnosed with 3 different types: petit mal...
Relapse worries

07/2019 | 1 Comments

Hi, Looking for some advice to see if anyone else has had a similar problem to me. I was diagnosed with Epilepsy in 2007 and after many years of trial...
Seizures

07/2019 | 2 Comments

I started having seizures in 2017 and I’ve had only had three seizure on my second one I almost died and on my third one on New Year’s Day this year...
Anyone else feel this way?

07/2019 | 2 Comments

My name is Rich and I juvenile mayoclonic epilepsy, or however it is spelled lol. I started having seizures about three years ago at the age of 22...
good story

06/2019 | 2 Comments

Hi I go to the driving rang several times a week, ride bike go to the gym. I have almost 10,000 steps on my body daily. The more exercise you have the...
My story so far

06/2019 | 3 Comments

Hello, I'm 25 and my first seizure was when I was 14 years old. It was at a friends house after staying up all night trying to get a perfect score on...
Alcohol Related Seizures

06/2019 | 2 Comments

Hi, I am 24 years old and have had 4 grand mal seizures. My first seizure occurred when I was 21. All have been after heavy nights of drinking. I...
Weird Habits

06/2019 | 1 Comments

So in the last year I have started noticing "weird habits" for lack of a better term (I blame my neurologist) and I'm not sure if it sounds seizure...
Adult just diagnosed.

06/2019 | 1 Comments

To think at 29 years old I would be dealing with this issue. Is something I never expected. Day in and day out it takes a toll on my body for 6 months...
Living With Seizures

06/2019 | 2 Comments

Hi, I'm Jasmine I'm 26 & I've been living with seizures for 3 yrs now.. I also have Rheumatoid arthritis and I've been dealing with that since I was...
Postical psychosis

06/2019 | 3 Comments

My son had a couple episodes of postictal psychosis… Has this ever happened to anyone else? He has since quit drinking alcohol and has been relatively...

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