Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Mothers with Epilepsy

04/2019 | 1 Comments

As a 21 year old pregnant epileptic, there's a lot of things you already worry about going into this crazy thing called adulthood. As a mother with...
1st Tonic clonic

03/2019 | 6 Comments

Hi I am not diagnosed with epilepsy as at the age of 51 I only had a first seizure 2 weeks ago and taken to hospital. I’m hoping just a one off as...
Dreaming about seizures

03/2019 | 4 Comments

Hello. I woke up at 4am to feed my 3 month old, she finishes, put her back to bed and then I went to lay back down. I started to fall asleep, but like...
Nocturnal Frontal Lobe Epilepsy? Part 1/2

03/2019 | 3 Comments

My epilepsy awareness technically started yesterday. When my neurologist, who was treating me for Non-specific Narcolepsy Type 2 for the past 6 months...
Nocturnal Frontal Lobe Epilepsy? Part 2

03/2019 | 1 Comments

Continued from part 1 I find a new psychiatrist to see if there is anything else to try. She puts me on clonidine(ok) and sertraline (ok,for the Mild...
14yr Old 1st Seizure

03/2019 | 3 Comments

My daughter just turned 14 and had her 1st seizure last month . The MRI shows she has cortical dyspasia which they have told us is a abnormally from...
LED Light Sensitivity

03/2019 | 2 Comments

Hello, I'm having a down day. They don't happen often, but it seems I'm being tested in a big way. Before I get too far, please know that I am a...
ATTENTION Other Mothers

03/2019 | 2 Comments

My daughter and I have been working on a book about her twenty-plus-year journey with epilepsy. It has stories about her life and "mama" advice from...
Dizziness all day everyday

03/2019 | 2 Comments

Hello recently for the past week I have started to have migraines and dizziness 24/7 and can barely get out of bed. I have always mostly suffered from...
Here to talk!

03/2019 | 3 Comments

Hi all! My name is Paige and I have JME. I was diagnosed in 2012 at 14 years old. I’m now 20 and taking 300mg of lamortagine (generic lamictal) once...
Hello Everyone!

03/2019 | 2 Comments

Hi I'm new here. I was first diagnosed with epilepsy in 2003 when I was 27. I have no history of seizures it just came out of the blue. At first I was...
First seizure at 19

03/2019 | 3 Comments

My name is Shaka, a 21 year old. I had my first seizure when I was 19 years old and was fast sleep when it happened. So there I was feeling tired, so...
Broken bones

03/2019 | 2 Comments

I had a seizure at work on 2.7.19. I am a 29 yr old female, with no history of seizure... I was sitting at my desk doing a loan application for my...
Am I having seizures?

03/2019 | 0 Comments

Today I had an odd episode where I was going to get something from the fridge when all of a sudden I felt hazy, slowed down, stopped in my tracks then...
my first post

03/2019 | 3 Comments

Hi, mt name is Hayleigh and i am 15 and has epilepsy my whole life. I have petit mal epilepsy and i am currently 5 months siezure free! I have not met...
Partial Complex So many questions

02/2019 | 7 Comments

Hi, Im hoping to share and maybe get some feedback. As im sure many of you can relate, I don’t have anyone that really understands what I go through...
Can it come back after 10 years?!

02/2019 | 3 Comments

hi all, i would like to share my story with you maybe I'll find some matches to mine. i was diagnosed with epilepsy at the age of 8 years old and...
Why now after 20 years?

02/2019 | 6 Comments

Hello: I was diagnosed with Epilepsy around 1983 and was seizure free for the first six years. In 1989 i had a traumatic event that caused a seizure...
Seizure or Panic Attacks?

02/2019 | 2 Comments

Hello, I am diagnosed with epilepsy when I was 9, because I had grand mal, and went through testing. Until today, I had 3 grand mal, and last one was...

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