Community Forum Archive
Topic: Surgery and Devices
06/2020 | 3 Comments
Looking for info on recovery from stereotactic EEG placement for surgical planning. Daughter will have this August and wondering about school planning...
04/2020 | 2 Comments
My son's current neurologist is pushing for Miami's Children hospital, but we would like to pursue Nemour's or John Hopkins All Children to get...
02/2020 | 2 Comments
Hi all, Am from India (Tamilnadu). My baby is 2 years old who suffering from epilepsy from her age of 3 months old. Drs done Clinical Exome test and...
02/2020 | 1 Comments
Hi! New here, and I couldn't find much information on helmets for falls or bangs during seizures. I wanted to see if anyone has any experience with...
02/2020 | 2 Comments
Has anyone had this for their seizures? My 26 year old son is apparently a candidate for this but I'm not sure if it's worth it or not, as the numbers...
02/2020 | 2 Comments
My son is 5 and has had two tonic clonic seizures. We suspect it is due to a DNET. His seizures have been at night so we are, of course, scared of...
02/2020 | 3 Comments
I had my left temporal amygdala removed 6 months ago and while I haven't had a seizure while still on my meds (!!!) I seem to have developed an...
02/2020 | 1 Comments
Hi guys! So let me tell you my husband's story - He was diagnosed with epilepsy in 2009. His neurologist at the time suggested that it may be because...
01/2020 | 1 Comments
I had a double craniotomy when I was 3 due to a severe head injury (TBI) open wound. An ALUMINUM MESH PLATE is on my right temportal lobe. I did not...
01/2020 | 10 Comments
My adult sister has an AVM deep in her left temporal lobe so removal surgery is too risky - if the surgery is not successful, she may lose ability to...
12/2019 | 1 Comments
Hi, We have a 2yo that has focal seizures where he zones out, his lips turn blue, and his breathing is irregular. It is currently being treated with...
12/2019 | 6 Comments
I have Temporal Lobe Epilepsy due to a tumor in my right temporal lobe... My surgeon is talking surgery. Has anyone else had this surgery before? Or...
11/2019 | 5 Comments
Hi, can anyone give me insights via their own experience with VNS surgery? Efficacy, side effects etc. Thank you
10/2019 | 4 Comments
Hello all I am 40. I have had seizures since adolescence. Started as auras and grand mals. Treated with different anticonvulsants. About 10 years ago...
10/2019 | 1 Comments
Hi! I was just in the emu for 2 weeks after doing an SEEG. We found out that the seizures are coming from the insula. Has anyone had their insula...
10/2019 | 6 Comments
Hello. I'd love to hear from anyone who has the RNS implant device (from Neuropace), and how long it has taken to truly be effective. My young adult...
09/2019 | 1 Comments
I always had petit-mal, never grand-mal. Has the TL-hippocampectomy on 08/09/2009. Was removed off carbazamephine, Auras began, but not to seizure...
09/2019 | 1 Comments
I have to make a decision for my 8 year old son between the VNS and the corpus collosotomy as his seizures are uncontrolled by medications. He has...
09/2019 | 1 Comments
Our son is 12 and will be having frontal lobe surgery in Nov. I was hoping to have him connect with someone that has experienced brain surgery that...
09/2019 | 3 Comments
I use to have epilepsy and now it's been over 120 day without any seizures! This is because I recently had brain surgery as part of the SLATE study...