I am 40. I have had seizures since adolescence. Started as auras and grand mals. Treated with different anticonvulsants. About 10 years ago, I went into SE and was placed on a ventilator for 14 days. At that time epilepsy was diagnosed as focal to secondary generalized seizures. That diagnosis hasn't changed since. Although mostly now I have focal seizures (Simple partial) upwards of 4 plus times a week with a grand mal about once or twice a year. Sometimes I will have a random nocturnal seizure. Medications have not controlled my seizures. I am on 3 anticonvulsants. Lamictal, Topamax and Briviact. My epileptologist referred me for VNS placement as well as wants me to strongly consider LITT or temporal lobe resection. He has referred me for EMU/presurgical consult.
I am anxious/overwhelmed/scared about this. He said that the surgery would basically be the cure and the vns in combination with meds just treatment. He is a great neuro specialist and I do trust his plan of care.
Really wanted to hear any thoughts. Does anyone else have any experience with VNS or surgical treatment for intractable focal seizures ?