Community Forum Archive

My Epilepsy Has Been Cured!

Mon, 09/09/2019 - 12:58
I use to have epilepsy and now it's been over 120 day without any seizures! This is because I recently had brain surgery as part of the SLATE study (https://clinicaltrials.gov/ct2/show/NCT02844465). I had a sclerosis in my left temporal lobe and the surgery used a basic laser procedure to remove the tissue with minimal impact. Since that time I have not had a seizure I have had epilepsy for 35 years that continued to get increase in severity. My seizures started as simple seizures and grew in severity to where I had complex seizures every 12 days. It is now awesome to live in a life without seizures! Curtis-

Comments

Hi Curtis_59fa6fc1eabfe,

Submitted by Anonymous on Tue, 2019-09-10 - 10:27
Hi Curtis_59fa6fc1eabfe,  Thanks so much for sharing your story and congratulations on being seizure free for over 120 days, that’s fantastic news! Recovering from epilepsy surgery is a journey.Learn more about the recovery process and common themes for people living with epilepsy & family members during their journey through epilepsy surgery,here: https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/recovery-and-life-after-surgeryGoals and expectations for surgery will vary for each person. It’s important for those who may be considering surgery as a treatment option to review their goals & expectations with their epilepsy team.https://www.epilepsy.com/learn/treating-seizures-and-epilepsy/surgery/goals-and-expectationsSometimes it's helpful to connect with other people who live with epilepsy and have had similar experiences, to ask questions, share experiences, find & give support to each other. Contact your local Epilepsy Foundation at: https://www.epilepsy.com/affiliates to find support groups, events, and programs in your community. Additionally you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional supportepilepsy.com/helpline  

Congratulations Curtis! As

Submitted by Patriotrehab on Wed, 2019-09-25 - 21:03
Congratulations Curtis! As ConnectHelp noted, the outcomes for surgery vary from person to person, but when someone is seizure free and with minimal tissue removal...that’s even better! I wish you the best! May you be seizure free for the rest of your life!

Wow sounds  a bit like my

Submitted by mandyannie on Mon, 2020-05-25 - 20:07
Wow sounds  a bit like my story except I haven't had the surgery.  It's been about 35 yr for me.  I have tried to explain my symptoms to doctors but because EEG's were normal I wasn't taken seriously.  I was diagnosed with idiopathic seizure disorder and only treated to prevent the grand mal.  The Neurologist I have now has changed my diagnosis to cortical dysplasia.  My seizures are getting worse as I get older.  I have the partial seizures as well but was never able to describe my symptoms well enough.  I might be a candidate for surgery but have to do the inpatient EEG to see if it will work for me.  I can't imagine life without medication and seizures.  It seems like an impossible dream. I  am so happy for you!

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