Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Surgery and Devices

The essence of a surgery

08/2019 | 2 Comments

Hello all, I am Ronnie, from India. Have been seizure free since last 10 years but with medications twice a day. I read success stories of people who...
Paige’s Story

07/2019 | 0 Comments

Please take a moment to check out Paige’s story. We understand not everyone can donate so please know that we appreciate everyone’s support regardless...
Right temporal lobe surgery

07/2019 | 5 Comments

I am 40 years old and have right temporal lobe epilepsy due to a small malformation in my right hippocampus. My neurologist and neurosurgeon think I...
laser ablation

07/2019 | 0 Comments

anybody have laser ablation and had health insurance that covered procedure if not completely to some extent. im having a hard time finding any...
Surgery -- experiences?

07/2019 | 21 Comments

Hi everyone, I am going to be evaluated for resection/laser ablation or RNS implantation. The first step will be the intracranial EEG. From the MEG...
New Device Designed for Seizure First-Aid

06/2019 | 0 Comments

Hi! I was diagnosed with epilepsy at the age of 11 (for 12 years now), and see a need for a product to manage seizures that occur in a public place, i...
VNS questions

04/2019 | 0 Comments

Hi I'm almost 21 and have been living with epilepsy since I was 9. I've been an extremely active human being ever since I can remember, I had a VNS...
What is a VNS like?

04/2019 | 1 Comments

My epilepsy specialist and my neurologist have both been introducing me to the idea of a vagus nerve simulator since they have a 99% success rate with...
T-vns device and VNS implant

04/2019 | 1 Comments

I had an VNS implant carried out in 2010 . But in 2015 I moved to Malta where they don't have VNS implant program and since the battery ran out over a...
VNS bracelet or sticker (for magnet)!

03/2019 | 0 Comments

Just found these & thought I'd share. Can add info with the full name of implant & says no mri no DIATHERMY. https://www.americanmedical-id.com...
Cost of Surgeon for Temporal Lobectomy

02/2019 | 4 Comments

Hi, I'm trying to get an idea of the surgeon cost for a temporal lobectomy in a private hospital. My health fund covers the hospital. Going to see him...
Possible VNS malfunction

02/2019 | 1 Comments

Not looking for medical advice, as I am calling Dr in morning. I had my device implanted 1/23/19. Tonight I stretched really big & felt a pop. I...
VNS side effects

02/2019 | 7 Comments

So, I had VNS surgery about a week and a half ago and every time it goes off it feels like my throat is tightening and there is a pain where the nerve...
Scared of surgery

01/2019 | 12 Comments

Hello. I am 42 years old and i have right temporal lobe epilepsy. I have exhausted all the medication changes that are worth dealing with. Now with...
Surgery option

12/2018 | 6 Comments

My doctor has given me 4 options for surgery for intractable epilepsy. Additional resection, I had prior partial TL resection & will not have another...
How many surgeries is too many?

12/2018 | 2 Comments

I’ve had to do 2 surgeries before and now they’re considering a 3rd. If it doesn’t look good then they’ll do a VNS or RNS. Would a 3rd be too many?
VPS Shunt Placement

11/2018 | 0 Comments

Hello, I'm new to this forum and am hoping to get some answers or find someone who has had a similar experience as my family and I are grasping at...
Post surgery questions

10/2018 | 5 Comments

Good morning everyone, my name is Lisa. I had left temporal lobe surgery 5 weeks ago. I haven’t had any seizures since then thank God but , my doctor...

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